Tuesday, December 24, 2013

Multiple Myeloma

12-24-13

Nothing new to say about MM except, compared to the recent deaths of good friends and serious sicknesses of others, I am blessed.

Enough about that; I decided to take a moment of your time to wish you a very Merry Christmas.  I don't know who you are (haven't figured out how to do that) but my good wishes for you are no less sincere.

Mary Ann tells me we are having 32 here tomorrow.  I can count 27 or so, name most of those, will be interested in seeing the others.

Have a great New Year, too.

Wednesday, December 18, 2013

Multiple Myeloma

12-18-13

Good visit with Dr. Abonour today.

About 40 blood tests, all within normal range except Hgb ( hemoglobin I think) slightly low, not enough to be concerned, just need to eat more steak and hamburger.  I need more diagnoses like that.

PET scan showed one small spot on a right rib, which may not be myeloma, all other spots are gone.  Not to worry about the one.

So, started tonight the two week regimen of revlimid and related drugs.  Back for blood tests on January 6, don't need to see Dr. Abonour until February 19. 

I did get another testosterone shot; Mary Ann and I believe they are helping relive the fatigue.  I suggested no vacuuming yet, nurses did not seem to agree.

Concerning the feet discomfort, others with MM have had similar problems, so relief may just take time.  Since walking and standing, but for a stagger now and then, are OK, should have no problem with golf next spring.

I doubt there will be much to say about MM for a while since I am in remission.  I might get back to this from time-to-time on other matters, like the Affordable Care Act, or same-sex marriage, or other non controversial matters.  Feel free to correct me at kbwilson@comcast.net.

Monday, December 16, 2013

Multiple Myeloma

12-16-13

Just noticed the blog two back was 1-13-13 - wonder what I was thinking as I typed.

Multiple Myeloma

12-16-13

Up at 3am yesterday, airport by 6, to D.C. for a memorial service for a good friend, back to the airport there and on a plane to Indianapolis by 4:30 - all without a nap and doing well;  Those at the service saw no evidence of Multiple Myeloma.

Reading on the plane back, entire body asleep but for right foot and leg which in essence controlled.  I walked the aisle three times to see if I could eliminate the foot and leg nervousness, no such luck.  Otherwise doing well, home by 7:15, in bed by 8:15, asleep despite feet discomfort by 8:17 or so, not up this morning until 3:30 - over seven hours good for me.

I see Dr. Abonour Wednesday.  I will tell him about the airplane foot and leg problem.  I hope to learn the extent to which MM or the meds therefor contribute to the problem.  I am ready to admit some of problem may be age, even mental, but I continue to believe MM does not help.

Back here after the Wednesday visit.



Friday, December 13, 2013

Multiple Myeloma

1-13-13

Hard to believe I have not blogged in December, but if I am able to get to my latest which might be suspect, I haven't.  A couple of my followers who apparently have time for this nonsense or, more likely, enjoy a jab now and then, asked if I could still type.

Not much to report.  Blood tests indicate remission.  I had a PET scan earlier this week, will get the results from Dr. Abonour next Wednesday, but informal report from his nurse said there appear to be no problems.  In other words, good news.

Mary Ann not doing as well.  Her problems: me, of course; simple compression fracture of L-(I forget the number) and her Dr. says not to worry, he will see her again the next week or so; and an eye that feels as though there is sand on the eyeball most of the time, that Dr. says Ok to try drops every 5 minutes or so - she is about ready for another opinion.  Further, her spouse is not as helpful as mine.

I will come back here next Wednesday after the visit with Dr. Abonour.  Until then, barring unforeseen problems, I won't take up you time.  Compared to some of the problems some of my good friends are having, mine can be considered a minor cold, with fatigue.