2-27-14
Started another two weeks off drugs yesterday. I keep hoping I will be less tired during an off week - hate to think the fatigue is all due to age.
I did receive since my last post highlights from my last lab results. Of the many tests listed, three are in the red, which is outside normal. Two of those are in the "Light Chains" section, both of which I believe are significant. But, my disease is described "in complete remission/near complete remission" which is the best choice listed, so I continue to be encouraged.
Next Monday Mary Ann and I will attend a seminar on MM conducted by Dr. Abonour. I may get a chance to ask about the "Light Chains."
I will give blood for testing sometime next week. Then, on March 12, start another two weeks on the drugs. I am not scheduled to see Dr. Abonour until April 23. That may be incorrect since it would be during another two weeks on drugs - I need to ask about that.
I continue to have feet discomfort, mainly when lying down. That my be my body saying "get with it."
I have had enough cold and snow.
Thursday, February 27, 2014
Thursday, February 13, 2014
Multiple Myeloma
2-13-14
Had a good, and short, visit with Dr. Abonour and staff yesterday. Not all blood test results were available when Mary Ann and I left, but Dr. Abonour said I continue to be in remission. He also said that after another two or three "two weeks on, two weeks off" regimen, I probably would be "off" for a longer period with regular but less frequent testing. All in all, very good news, and I began an "on" period last evening.
I got some smiles from him and the nurse sitting in: when I lamented that I was no longer the most famous MM sufferer i.e. Tom Brokaw; when I wondered if my fatigue was due more to age and weather than disease and treatment therefor (he suggested, and the nurse nodded, that I should keep going to Tracy for physical therapy and add some exercise on my own); when I mentioned "light headed" and mused that the pipe might often be the cause (he did not even hint that I should quit, probably thinking it would be a wasted of his words); and when I wondered if he could prescribe a trip to the Caymans.
In no way did we feel he was hurrying us along, but we got the message - he has more critical patients with whom to deal.
I may not get back here for a couple of weeks - seems foolish to keep saying all is as well as could be expected. I know cure is not in the future, but control is, and that is enough. I have had thoughts with which to enliven this blog, like, is ours the only house not warm enough in the winter and too warm in the summer without touching the thermostat, but I won't bother you readers with such non MM matters, except: I have been trying to understand quantum computers and, in connection with the Wednesday group of which I am the iconoclast, who was Jesus, and the understanding of the first is more likely to come before understanding the second.
I hope as you read this, you are as healthy as I, age adjusted.
.
Had a good, and short, visit with Dr. Abonour and staff yesterday. Not all blood test results were available when Mary Ann and I left, but Dr. Abonour said I continue to be in remission. He also said that after another two or three "two weeks on, two weeks off" regimen, I probably would be "off" for a longer period with regular but less frequent testing. All in all, very good news, and I began an "on" period last evening.
I got some smiles from him and the nurse sitting in: when I lamented that I was no longer the most famous MM sufferer i.e. Tom Brokaw; when I wondered if my fatigue was due more to age and weather than disease and treatment therefor (he suggested, and the nurse nodded, that I should keep going to Tracy for physical therapy and add some exercise on my own); when I mentioned "light headed" and mused that the pipe might often be the cause (he did not even hint that I should quit, probably thinking it would be a wasted of his words); and when I wondered if he could prescribe a trip to the Caymans.
In no way did we feel he was hurrying us along, but we got the message - he has more critical patients with whom to deal.
I may not get back here for a couple of weeks - seems foolish to keep saying all is as well as could be expected. I know cure is not in the future, but control is, and that is enough. I have had thoughts with which to enliven this blog, like, is ours the only house not warm enough in the winter and too warm in the summer without touching the thermostat, but I won't bother you readers with such non MM matters, except: I have been trying to understand quantum computers and, in connection with the Wednesday group of which I am the iconoclast, who was Jesus, and the understanding of the first is more likely to come before understanding the second.
I hope as you read this, you are as healthy as I, age adjusted.
.
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