Friday, November 13, 2015

Mu;tiple Myeloma

11-13-15

Met with Dr. Abonour  on Wednesday to learn that the newest regimen did not favorably affect the bad blood test - to the contrary, the bad got badder.  Consequently, I am beginning another regimen, much like my first one from more than two years back, with the hope to get the bad under control by the end of the year when promising new drugs should be available.

The amusing aspect of that first regimen, which those of you who have labored along with me since the blog started will remember, was the commitment and reporting concerning unprotected sex.  Again now, I have agreed to proper behavior by signing a three page series of commitments.  One statement of truth would have been enough to cover all three pages.

I have no physical awareness of "the bad got badder", possibly because I have the other matters mentioned below with which to deal, but more likely because the bad simply is not patent.  Some of the other matters are.

Just over two weeks ago I ended five days of radiation to clear (we hope) the lesion where my hip bone connects to my thigh bone.  The Docs say we should know in 6,8, or 10 weeks if the zapping did the job.  So, I continue to get about with a cane and have a self-rating pain scale of 0-10, with 0 meaning none and 10 being a faint.  I have many zero times, no faints to date.  Despite that 6,8,10 wait, I believe I have some lessening of pain in walking, maybe a good sign.

Probably unrelated to the cancer, but more troublesome just now, I have considerable swelling in my feet and ankles, so much that the skin has broken in two spots on my right leg.  Diuretics have not helped.  I am going to the IU Wound center next week to see if they can help.

I continue to believe whatever will be, will be, so I do what Dr. Abonour and the other doctors say to do, and proceed. 

My greatest frustration, which I have had for years and which is unrelated to mortality, is knowing I cannot get read all I have to read.  My desktop is full, my iPad has books unopened, and I keep adding others.  I am a mile wide and an inch deep in my reading - there ought to be a subject in which I have no interest.  I suppose that is better than having nothing of interest - then I might worry about having cancer.

I see Dr. Abonour on December 16 and will be back here soon thereafter.  If in the interim there are remarkable results on the other problems, I will report them.

Have a great Thanksgiving.