Friday, December 18, 2015

Mulstiple Myeloma

12-18-15

Good news since my last post.  Having since then been on two chemo regimens and a doubling of steroid infusion, the blood tests are remarkably close to normal.  Further, I now have little pain from the lesion for which I had the radiation treatments.  Not in remission (which with respect to MM, I define as waiting for another bout) but apparently close.

I have had a heart murmur (mitral valve prolapse which I refer to as my MVP) for many years.  In the course of trying to determine the cause of my leg swelling, an I.U. cardiologist ordered an echo EKG, read it, and determined open heart surgery was called for, but not until the MM was under control.  Referred on to two surgeons who agreed that there was no immediate need but that the valve should be repaired once the MM was in remission.  I have no reason to doubt their conclusion, but I have had echos for many years, the latest in 2014, administered by my cardiologist, who I have asked to look at this recent echo to see what he thinks.  Up to now he has said surgery is an option but probably not necessary since there has been no change over the many years.  Since I have never had patent symptoms, I don't think he has so advised to take advantage on the golf course.

Coming down from the double steroid, if that is what I am experiencing, is a bit difficult.  Up and about with energy yesterday but almost total collapse last evening.  If next week is the same, no Christmas Eve service for me, and as I write, I wonder what I will be like a week from now when the gang arrives.  Maybe some can come at 5:00 a.m. (now) when I am alert.

Whatever I wish you a Merry Christmas (or whatever you celebrate) and a happy New Year.  I will get back here mid January