Tuesday, September 24, 2013

Multiple Myeloma

9-24-13

Back when this all started with numbness in my feet, Dr. French, neurologist, saw a unusual protein level in my blood.  He immediately referred me to Dr. Milton, an oncologist with Hematology-Oncology of Indiana (HOI).  Dr. Milton had me tested for bone myeloma and bone marrow myeloma, both negative.  Finally, a PET scan (whatever that is) revealed the multiple myeloma.  In other words, my MM was difficult to diagnose and unusual.

This afternoon Mary Ann and I met with Dr. Milton to hear the results of the third 21 day regimen of revlimid and dexamethasone.  The results are remarkable.  I can't give the technical explanation, suffice it to say the high negative levels have decreased considerably, really considerably.

As soon as I can get another 21 days of revlimid, I will start another regimen.  There is no need for an interim blood test, just for the labs again on October 17 prior to seeing Dr. Milton again on October 22.

The tiredness will continue but may get less severe.  The up and down from dexamethasone (steroid) will not ease, but considering the above results, so be it.

Dr. Milton is pleased, so are we.

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