Multiple Myeloma

11-21-14

MM is not curable; it is treatable, and I may be up for some more of that.

The offending blood test, Kappa Light Chains Free, which had shown improvement in September over August, was more out of normal in the blood draw earlier this week than it had been in August.  Since, in layman's terms, the Kappa test has to do with fighting infections, a problem with MM, Dr. Abonour has ordered some additional testing the first week of December.  One of those is a PET scan to see if any MM spots show.

If those tests so indicate, a return to treatment is planned.  It will not be with Revlimid.  It will be with Kyeprolis, which is still in the study phase but has shown some good results.

I started to read the info they gave me for Kyeprolis, quit when I saw all the possible side effects and that dexamethasone might be added - dex is a steroid I dislike.  It doesn't make sense  to worry about what might be until the effects are known.  I did notice that I will again have to agree not to have unprotected sex - I don't know if that is to amuse the nurse instructing me or to give my "friends" another laugh.

Other than the Kappa test results, not much has changed.  My fatigue is the same, and Dr. Abonour is quick to remind me of my age when that comes up.  I seem to be having a bit more difficulty with my feet, but that may be more neurological than MM.  No problems with kidney function, no weight loss, lousy sleep habits but not unusual for me.  No memory change, which means I seldom have to wonder when in the shower if I have shampooed.  I am a bit more irritable, but that, too, is likely to be age related.

None of the above is a surprise.  We have known from the start that MM is not, as of today, curable. So, whatever will be continues to be what will be.

I should get back here late the first week of December or early the second.

Have a great Thanksgiving.

kb