Thursday, April 2, 2015

Multiple Myeloma

4-2-15

Saw Dr. Abonour yesterday.  He noted my Free Kappa/Lambda ratio had increased from 1.8 to 3.33 - the preferred range is .26 to 1.65 - but thought it was not enough out of preferred to change my current regimen, which is chemo & steroid for two Wednesdays, off a third, see him on the fourth.  I should get his written report in a day or so, will be interested in how he will classify my disease.  For those of you who follow this monthly, I will have an interim report late next week to tellyou what he says.

I don't have any symptoms to suggest I am better or worse.  Thus, when Mary Ann and I drive to see him we don't know what to expect - we do know MM is not curable, but is treatable.  We just hope for the latter if the remission fails.  We go from month-to-month in limbo, so to speak.  That's better, though, than having negative symptoms along the way.

I had a high temp reading early this morning.   Awakened Mary Ann to find other thermometers, they read normal so no worry - probably had warm pipe smoke for the first.  High temp is a no-no, am instructed to call Dr. Abonour whatever the hour.  Pleased we didn't bother him.

I hear "you don't look like you have cancer" frequently.  I suppose that is due to my not having apparent weight loss, and were I wearing a wig to hide hair loss, I surely would improve on my natural mop.   Any fatigue that shows can be attributed to age, as it so often is by Dr. Abonour even though he knows MM does cause some of it.  All in all, I continue with the thought that I am doing very well for my age, cancer notwithstanding.

I hop to get back here late next week.

Have a great Easter.


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