Friday, October 30, 2015

Multiple Myeloma

10-30-15

I said in my last blog I would see Dr. Abonour on November 4 and would report soon thereafter - not so, I see him on November 11 to learn if the latest regimen is working, and I will report soon thereafter.

Regarding the radiation treatments:  had number five last Wednesday and now the wait.  In essence, I will determine if the treatments were successful - if I no longer have the pain in my right leg.  In the interim, I am to be very careful with the leg, if I do something that hurts, I don't do it.  The hope is the cancer cells will be gone and the bone will regenerate.

We were surprised to see the area of zapping.  They did not pinpoint the lesion, they zapped from my middle to my exterior, said they hoped to get any cancer cells in the area.  That makes sense to me, and I just lay on the table and let them have at it.  The only discomfort was in my tailbone - those table are not very comfortable.

I have not had pain relief in these two days since the last treatment.  Not unusual, they tell me weeks may be required for full relief.  They repeat: "behave, with limited activity" so I will.

I will be back soon after 11/11.

Saturday, October 17, 2015

Multiple Myeloma

10-17-15

I just read the last post, had not remembered I said I would get back in a week, not even certain why I said it.  I will try to get current.

Re the cancer, the switch did not work.  That bad blood test is out of sight, above 1,000 with 9 being the suggested high.  So, this past Wednesday I got back on a three week on, one week off regimen, with a combination of chemos which has worked for others.  I will see Dr. Abonour on 11-4 to learn if this new regimen works better and will report here.

Re the lesion on my ilium, which I call a hole in my hip bone, I am to begin radiation therapy on 10-22.  They will zap me 4, 5, or 10, times - not sure which.  The intent is to destroy the lesion (cancer) to allow the bone to regenerate.  I will have to be careful walking or whatever for 10 weeks or so but then possibly will be able to swing a club again.  I put too much emphasis on the golf nonsense, haven't wanted to swing a club, but it is a goal I suppose - better than jogging which I have never wanted to do.

I had a scan yesterday for them to have a "picture" to use for the zapping.  Unfortunately, I twisted improperly (my fault) getting on the table and incurred a strong 9 pain level in my upper right leg, remnants of which I feel today.  In addition, I started two new drugs last evening to reduce extra fluid in my body (edema) primarily in my ankles - drugs my body is not accepting well.  The combination of those two items has me house bound, fatigued, and sleepy - useless, in other words.  About the only exercise I get right now is jumping to conclusions.

I do try, however, to stay out of Mary Ann's way so she can get the deck painted, the birds fed, the new plantings watered, the laundry done, and food ready upon command.  She is, you know, younger than I.

For those of you who sneak a look here from time-to-time, I will get back with the radiation schedule sometime next week.  I might even relate what zapping is like - I expect it will be much preparation for a quick hit.

I still enjoy ice cream every day, often more than once, and get three or four hours of reading before the normal breakfast hour.