10-17-15
I just read the last post, had not remembered I said I would get back in a week, not even certain why I said it. I will try to get current.
Re the cancer, the switch did not work. That bad blood test is out of sight, above 1,000 with 9 being the suggested high. So, this past Wednesday I got back on a three week on, one week off regimen, with a combination of chemos which has worked for others. I will see Dr. Abonour on 11-4 to learn if this new regimen works better and will report here.
Re the lesion on my ilium, which I call a hole in my hip bone, I am to begin radiation therapy on 10-22. They will zap me 4, 5, or 10, times - not sure which. The intent is to destroy the lesion (cancer) to allow the bone to regenerate. I will have to be careful walking or whatever for 10 weeks or so but then possibly will be able to swing a club again. I put too much emphasis on the golf nonsense, haven't wanted to swing a club, but it is a goal I suppose - better than jogging which I have never wanted to do.
I had a scan yesterday for them to have a "picture" to use for the zapping. Unfortunately, I twisted improperly (my fault) getting on the table and incurred a strong 9 pain level in my upper right leg, remnants of which I feel today. In addition, I started two new drugs last evening to reduce extra fluid in my body (edema) primarily in my ankles - drugs my body is not accepting well. The combination of those two items has me house bound, fatigued, and sleepy - useless, in other words. About the only exercise I get right now is jumping to conclusions.
I do try, however, to stay out of Mary Ann's way so she can get the deck painted, the birds fed, the new plantings watered, the laundry done, and food ready upon command. She is, you know, younger than I.
For those of you who sneak a look here from time-to-time, I will get back with the radiation schedule sometime next week. I might even relate what zapping is like - I expect it will be much preparation for a quick hit.
I still enjoy ice cream every day, often more than once, and get three or four hours of reading before the normal breakfast hour.
Is it your kappa or Lamba light chains that are over 1000. My kappa light chains have hovered @900- 1100 for the last year. Is it causing other issues, anemia, lesions?? What is your m protein. . .my kappas have hovered a@ 900 for over a year but so far no issues. I'm on pomalyst and dex.
ReplyDeleteI just noticed your comment, sorry for the delay. It is the first I have seen in all this, didn't realize possible. Yes, it is my Kappa/Lambda over 1,000. As a result (I think) scan showed a lesion which has just been zapped with radiation and we should know before too long if it worked, if my pain will be gone.
ReplyDelete