8-28-13
Having again aced the drug company's exam re my physical activities, lack thereof that is, I am back on the meds, have been for two days now. Nothing much new, with the possible exception of my tiredness, which seems even more severe. I now wonder if I should add to age, disease, and drugs, the cause of mental, although it may be memory - as noted, my long term is not very good.
We do have a big, for us, weekend coming up. Next Friday we will have dinner in Wabash with some of the Mattern clan, then on Saturday have lunch with Mary Ann's class, which meets every year the Saturday after Labor Day. During that time I will have the ups and downs of steroid treatment, which should be interesting. Since a closed mind is a sign of hidden doubt, I will be open to whatever will be, will be.
Saturday, August 31, 2013
Tuesday, August 27, 2013
Multiple Myeloma
8-23-13
Good, better than good, visit to Dr. Milton's office this afternoon.
Started with fine readings re blood pressure, pulse, oxygen, and temp.
I related to Dr. Milton in abbreviated form much of what I have been reporting on this blog.
He said: feet numbness - probably would persist for 6 months or so, and to be expected.
tiredness - both from disease and medicine (he was kind enough not to add age.)
steroid reaction - up and down normal.
He then said additional blood tests from Friday past were very good, significant reduction in protein level, the level that indicated MM a few months back. He also reported another positive improvement the details of which I forget.
I asked about two other drugs I have read about. He said both were good but both had numbness as a by product - he thought I had enough numbness as it is.
Concerning my reactions to revlimid, the drug I am taking, he said he could reduce the dosage, would for most my age, but the results were so favorable he suggested staying at the higher level, at least for the next 21 day regimen. Mary Ann and I agreed.
No need for a biopsy because apparent.
Had another 30 minute infusion of zometa for bone strength and left, tired but pleased. Back to revlimid later this week.
Good, better than good, visit to Dr. Milton's office this afternoon.
Started with fine readings re blood pressure, pulse, oxygen, and temp.
I related to Dr. Milton in abbreviated form much of what I have been reporting on this blog.
He said: feet numbness - probably would persist for 6 months or so, and to be expected.
tiredness - both from disease and medicine (he was kind enough not to add age.)
steroid reaction - up and down normal.
He then said additional blood tests from Friday past were very good, significant reduction in protein level, the level that indicated MM a few months back. He also reported another positive improvement the details of which I forget.
I asked about two other drugs I have read about. He said both were good but both had numbness as a by product - he thought I had enough numbness as it is.
Concerning my reactions to revlimid, the drug I am taking, he said he could reduce the dosage, would for most my age, but the results were so favorable he suggested staying at the higher level, at least for the next 21 day regimen. Mary Ann and I agreed.
No need for a biopsy because apparent.
Had another 30 minute infusion of zometa for bone strength and left, tired but pleased. Back to revlimid later this week.
Saturday, August 24, 2013
Multiple Myeloma
8-24-13
3+ days I have been off the meds, and that is the only change - not taking pills. I am no less tired, my feet numbness is up and down, and I have my fuzzy head moments.
I don't know what I expected last Wednesday (as I have mentioned, my long term memory is lacking) but it was not just more of the same. Having attributed my symptoms to age, to the disease, and to treatment of the disease, apparently only the last can to some extent be eliminated.
Had the blood tests again yesterday, all are good. While there I spoke with Tammy - supervisor of nursing - who suggested coming down from the steroids might be another cause of my symptoms. She also said she was going to order another 21 day supply of revlimid, which will give me another opportunity to explain my physical activities - thank goodness they don't require Mary Ann's confirmation.
I see Dr. Milton on Tuesday. Possibly I will have a more learned idea of where this is all headed. Then, I will start the third 21 day regimen, after which I hope to have a biopsy or two to see if there has been any change in the myeloma.
As someone once said, it is a wearisome disease to preserve health by too strict a regimen, but I will keep at it.
3+ days I have been off the meds, and that is the only change - not taking pills. I am no less tired, my feet numbness is up and down, and I have my fuzzy head moments.
I don't know what I expected last Wednesday (as I have mentioned, my long term memory is lacking) but it was not just more of the same. Having attributed my symptoms to age, to the disease, and to treatment of the disease, apparently only the last can to some extent be eliminated.
Had the blood tests again yesterday, all are good. While there I spoke with Tammy - supervisor of nursing - who suggested coming down from the steroids might be another cause of my symptoms. She also said she was going to order another 21 day supply of revlimid, which will give me another opportunity to explain my physical activities - thank goodness they don't require Mary Ann's confirmation.
I see Dr. Milton on Tuesday. Possibly I will have a more learned idea of where this is all headed. Then, I will start the third 21 day regimen, after which I hope to have a biopsy or two to see if there has been any change in the myeloma.
As someone once said, it is a wearisome disease to preserve health by too strict a regimen, but I will keep at it.
Wednesday, August 21, 2013
Multiple Myeloma
8-21-13
Last evening at dinner I finished the second 21 day treatment regimen of revlimid and related pills. I have another lab test on Friday, possibly another infusion of zometa for bone density (I can't spell osteoporosis) and see Dr. Milton on Tuesday, 8-27. I anticipate him ordering another 21 day regimen at the end of which they will take a biopsy to see the consequences of the three regimens.
So, for one week I will not be on meds. I am anxious to see what effect that will have on my bearing, to see if I am less tired, less fuzzy headed, more normal, whatever that means. I doubt it will get me back working in the yard, but it might cause me to want to, which Mary Ann will discourage (that is a euphemism for "don't be silly".) I also am hopeful that there will be a way to temper the two-day down time after the one day up from the steroids.
I hope not to spend so much time watching my health that I won't be able to enjoy what I have.
Last evening at dinner I finished the second 21 day treatment regimen of revlimid and related pills. I have another lab test on Friday, possibly another infusion of zometa for bone density (I can't spell osteoporosis) and see Dr. Milton on Tuesday, 8-27. I anticipate him ordering another 21 day regimen at the end of which they will take a biopsy to see the consequences of the three regimens.
So, for one week I will not be on meds. I am anxious to see what effect that will have on my bearing, to see if I am less tired, less fuzzy headed, more normal, whatever that means. I doubt it will get me back working in the yard, but it might cause me to want to, which Mary Ann will discourage (that is a euphemism for "don't be silly".) I also am hopeful that there will be a way to temper the two-day down time after the one day up from the steroids.
I hope not to spend so much time watching my health that I won't be able to enjoy what I have.
Monday, August 19, 2013
Multiple Myeloma
8-19-13
After our enjoyable visit to Columbus on Friday, Saturday and Sunday were difficult days - what I call coming down from steroids. We did have a delightful visit yesterday with Clair and Cherry Law who stopped by on their way home from Ohio to Kansas. They were kind enough not to notice my fuzzy demeanor and rather than reminisce about 40 years of association, we talked about the present and future.
Tomorrow I will end the second 21 day treatment regimen. I probably will take another dose of steroids, have an up day, two down days, and soon thereafter begin the third regimen. I think after that one, there will be a biopsy to see if the treatment has had any effect.
Right now, early Monday morning, I am normal, whatever that means.
After our enjoyable visit to Columbus on Friday, Saturday and Sunday were difficult days - what I call coming down from steroids. We did have a delightful visit yesterday with Clair and Cherry Law who stopped by on their way home from Ohio to Kansas. They were kind enough not to notice my fuzzy demeanor and rather than reminisce about 40 years of association, we talked about the present and future.
Tomorrow I will end the second 21 day treatment regimen. I probably will take another dose of steroids, have an up day, two down days, and soon thereafter begin the third regimen. I think after that one, there will be a biopsy to see if the treatment has had any effect.
Right now, early Monday morning, I am normal, whatever that means.
Friday, August 16, 2013
Multiple Myeloma
8-16-13
Last Friday (8-9) I took my steroid fix mid-morning (I had forgotten earlier) and on Saturday awoke ready to take on the world. As I reported earlier, I had a busy day, even did some work outside. Then, Sunday, Monday, and a bit of Tuesday, I was zombie like - worthless. There is the possibility that I took the steroid hit too soon after resuming the Revlimid program.
So this week, having been back on Revlimid for more than a week, I moved the steroids to Thursday morning, and awoke this morning, again with much energy. But I did not take on the world, I rested until 10, then Mary Ann and I drove to Columbus, IN to meet with Mary Stroh, oldest g/child, attorney, who is helping us with our estate planning. We then had lunch with Beth, John, Mary and Patrick, and went to see the house the four of them are renovating for Mary and Patrick to enjoy in the near future. They have done a tremendous amount of work, excellent work, and we are anxious to see the finish.
Mary Ann and I returned to Indianapolis around 3, I immediately took my afternoon nap, and have just had dinner. The steroids are wearing off, I am my usual lackluster 8 o'clock self, about ready to turn in. Tomorrow we will see if I am in for another Zombie day or two. More here tomorrow, I hope.
Last Friday (8-9) I took my steroid fix mid-morning (I had forgotten earlier) and on Saturday awoke ready to take on the world. As I reported earlier, I had a busy day, even did some work outside. Then, Sunday, Monday, and a bit of Tuesday, I was zombie like - worthless. There is the possibility that I took the steroid hit too soon after resuming the Revlimid program.
So this week, having been back on Revlimid for more than a week, I moved the steroids to Thursday morning, and awoke this morning, again with much energy. But I did not take on the world, I rested until 10, then Mary Ann and I drove to Columbus, IN to meet with Mary Stroh, oldest g/child, attorney, who is helping us with our estate planning. We then had lunch with Beth, John, Mary and Patrick, and went to see the house the four of them are renovating for Mary and Patrick to enjoy in the near future. They have done a tremendous amount of work, excellent work, and we are anxious to see the finish.
Mary Ann and I returned to Indianapolis around 3, I immediately took my afternoon nap, and have just had dinner. The steroids are wearing off, I am my usual lackluster 8 o'clock self, about ready to turn in. Tomorrow we will see if I am in for another Zombie day or two. More here tomorrow, I hope.
Tuesday, August 13, 2013
Multiple Myeloma
8-13-13
Haven't been here for a few days which I will try to explain as I get from last Friday to today. Unfortunately, although my short term memory (an hour or so) seems OK, anything longer is suspect, which if nothing else means you won't have to read a lot of nonsense.
Friday Up and out early, feeling frisky. Got to the Friday group at Panera and realized it was my 5 pill steroid day so back home, swallowed the pills, and soon thereafter for the rest of the day was worthless - too tired to do much. I had expected a different reaction, a burst of energy like the day the steroids had me driving around the golf course. Truth is, I don't know how nor when they kick in - maybe the next day which was
Saturday A really good day - maybe a delayed steroid kick in. Very little foot numbness, no rib discomfort. Finally finished putting up the bathroom fixtures, got to the farmers market and was able to last while Mary Ann visited with a former neighbor, which was not quick. Even did a bit of shopping, bought an inexpensive work-in-the-yard watch thinking I might get some outside work done. The watch keeps perfect time, twice daily, because it doesn't run, which might have been a omen for days to come. Had the leaf blower going briefly, pulled some foreign growth in the front yard. All was well, BUT
As I tried to log in to report, no internet connection - good ole Comcast. Many days I think about trying AT&T, our only alternative for internet, phone and TV, only to have someone tell me the problems they are having with them. Furthermore, changing would be a monumental task, one I may not be up for.
Sunday Awakened with numbness in both feet and in both legs up to my knees. Fuzzy headed, could not walk straight, did not want to stay awake, and was slightly nauseous. Lasted all day. I was able to drive to Steak n Shake without incident for the only good taste of the day.
I did get back on the internet with help from a lady in Hawaii, who said as we were closing our conversation that she didn't know why Comcast had shut us down - neither did I. Neither did she explain how she got us back on, nor was I in the mood to ask. BUT
I could not get to this page to post. Fortunately, I was able to reach Andy Dietz, our guru, who took over my PC remotely and resolved that problem, but I did not post - too tired.
Monday Just like Sunday, fuzzy headed, foot and leg numbness, walking as though a bit drunk, and miserable. No rib discomfort, though.
Today A good start, some foot numbness, nothing in the legs, able to walk straight, had a good breakfast and am planning on a slow day but a much better one. I suspect there may be no routine in all of this - might know more after visit with Doctor next week.
Too bad we can't make health catching rather than disease.
Haven't been here for a few days which I will try to explain as I get from last Friday to today. Unfortunately, although my short term memory (an hour or so) seems OK, anything longer is suspect, which if nothing else means you won't have to read a lot of nonsense.
Friday Up and out early, feeling frisky. Got to the Friday group at Panera and realized it was my 5 pill steroid day so back home, swallowed the pills, and soon thereafter for the rest of the day was worthless - too tired to do much. I had expected a different reaction, a burst of energy like the day the steroids had me driving around the golf course. Truth is, I don't know how nor when they kick in - maybe the next day which was
Saturday A really good day - maybe a delayed steroid kick in. Very little foot numbness, no rib discomfort. Finally finished putting up the bathroom fixtures, got to the farmers market and was able to last while Mary Ann visited with a former neighbor, which was not quick. Even did a bit of shopping, bought an inexpensive work-in-the-yard watch thinking I might get some outside work done. The watch keeps perfect time, twice daily, because it doesn't run, which might have been a omen for days to come. Had the leaf blower going briefly, pulled some foreign growth in the front yard. All was well, BUT
As I tried to log in to report, no internet connection - good ole Comcast. Many days I think about trying AT&T, our only alternative for internet, phone and TV, only to have someone tell me the problems they are having with them. Furthermore, changing would be a monumental task, one I may not be up for.
Sunday Awakened with numbness in both feet and in both legs up to my knees. Fuzzy headed, could not walk straight, did not want to stay awake, and was slightly nauseous. Lasted all day. I was able to drive to Steak n Shake without incident for the only good taste of the day.
I did get back on the internet with help from a lady in Hawaii, who said as we were closing our conversation that she didn't know why Comcast had shut us down - neither did I. Neither did she explain how she got us back on, nor was I in the mood to ask. BUT
I could not get to this page to post. Fortunately, I was able to reach Andy Dietz, our guru, who took over my PC remotely and resolved that problem, but I did not post - too tired.
Monday Just like Sunday, fuzzy headed, foot and leg numbness, walking as though a bit drunk, and miserable. No rib discomfort, though.
Today A good start, some foot numbness, nothing in the legs, able to walk straight, had a good breakfast and am planning on a slow day but a much better one. I suspect there may be no routine in all of this - might know more after visit with Doctor next week.
Too bad we can't make health catching rather than disease.
Friday, August 9, 2013
Multiple Myeloma
8-9-13
Haven't had much to post the past three days. Up and about from early rising until after lunch nap. Then up and frustrated that there is little I can do but complain that there is little I can do the rest of the day - at least little requiring physical activity.
So, this morning I decided to join the Friday Panera group after stopping by Meridian Hills to visit with Jim Hess, who has an employee available after work hours to help me with heavy lifting. During our conversation I realized that today, Friday, is my steroid day - 5 pills. I am, obviously, back home, have swallowed the pills, and awaiting my reaction thereto.
I continue to have some discomfort with the rib, but not so much that I don't get irritated with inactivity. I get sorrier and sorrier for Mary Ann having to deal with me. She is hanging tough.
Haven't had much to post the past three days. Up and about from early rising until after lunch nap. Then up and frustrated that there is little I can do but complain that there is little I can do the rest of the day - at least little requiring physical activity.
So, this morning I decided to join the Friday Panera group after stopping by Meridian Hills to visit with Jim Hess, who has an employee available after work hours to help me with heavy lifting. During our conversation I realized that today, Friday, is my steroid day - 5 pills. I am, obviously, back home, have swallowed the pills, and awaiting my reaction thereto.
I continue to have some discomfort with the rib, but not so much that I don't get irritated with inactivity. I get sorrier and sorrier for Mary Ann having to deal with me. She is hanging tough.
Tuesday, August 6, 2013
Multiple Myeloma
8-6-13
Yesterday and Sunday past were reasonably good days as the days go. The times were mostly as I have explained. From the second rising until after lunch, up and somewhat about - even accomplished a chore or two without resting. Tired until dinner, a bit of a walk, then to bed.
Possibly the biggest problem is for Mary Ann having to put up with my irritation at not being able to do more. I have my putter in the Tahoe with a few golf balls, thinking I might stop by a putting green somewhere - have not done so.
Today to this moment, more of the same.
Yesterday and Sunday past were reasonably good days as the days go. The times were mostly as I have explained. From the second rising until after lunch, up and somewhat about - even accomplished a chore or two without resting. Tired until dinner, a bit of a walk, then to bed.
Possibly the biggest problem is for Mary Ann having to put up with my irritation at not being able to do more. I have my putter in the Tahoe with a few golf balls, thinking I might stop by a putting green somewhere - have not done so.
Today to this moment, more of the same.
Sunday, August 4, 2013
Multiple Myeloma
8-4-13
Yesterday, after that ridiculously long blog of the morning, turned out to be a really good day. Mary Ann and I got to the farmer's market, to Wild Birds, and to Costco; Karen got to yoga. We had a good lunch and dinner. But for a bit of discomfort with the rib, no other problems - only a slight foot numbness and no dizziness.
Hoping for the same today - quit watching my health so much that I don't have time to enjoy it.
Yesterday, after that ridiculously long blog of the morning, turned out to be a really good day. Mary Ann and I got to the farmer's market, to Wild Birds, and to Costco; Karen got to yoga. We had a good lunch and dinner. But for a bit of discomfort with the rib, no other problems - only a slight foot numbness and no dizziness.
Hoping for the same today - quit watching my health so much that I don't have time to enjoy it.
Saturday, August 3, 2013
Multiple Myeloma
8-3-13
This one is going to be more disjointed, more off on tangents, and clearly too long. Fortunately, you can bug off if you haven't already. I am asked from time-to-time what my days are like. I know that is often similar to the greeting "how are you" hoping not to hear, but I am using the possibility of sincerity to answer with a days (yesterday) activity. If nothing else, since yesterday was a weekly steroid fix, I can look back next week to see what I did wrong - my short term memory is good, I almost always know exactly where I put my phone down, long term i.e. a day or so, not so good. So, here goes yesterday.
2:15 am out of bed. Unreasonable as that may seem I have had 5+ hours of sleep, same as pre MM. no discomfort.
2:15 to 3:30 Noticing some rib discomfort. Reading emails. Reading The Christian Agnostic the book just chosen by the Wednesday group with whom I hope to get back to soon. I mention the book because above my computer I have affixed two cites expressing principles I try to follow - one is from The Christian Agnostic, plus I have been so called by a professor at Christian Theological Seminary. I usually disagree with her, she usually humors me.
3:30 Steroid fix.
3:30 to 5;00 Reading the Indianapolis Star, including a glance at obits (started well before MM) and the internet versions of the New York Times and the Boston Globe - I frequently watch Fox news to get the other side. I just noticed that the Times is selling the Globe to the owner of the Boston Red Sox for $70 million, having purchased it for $1.3 billion in 1993. Goes to show the Times makes big mistakes, and that, despite all the prohibited drug problems, baseball is in much better shape than newspapers.
5:00 to 5:30 Breakfast with the comics, which I understand, mostly, the bridge column which I often don't, and the crossword which I do as far s possible without writing - can't handle a spoon and a pencil at the same time.
5:30 to 6:00 I usually work in a quick nap at this juncture, thus getting out of bed like normal folks, but no such yesterday. Must have been an effect from the steroids as expected, or my thinking it was that, which is about the same.
6:00 to 6:40 Brushed my teeth which I mention only to note that I am unable to do that wrong handed no matter the effort to be careful with the right side fracture, shaved (same as brushing) showered (often the highlight of my day) dressed, and frisky with steroids skipped out before my caregiver had a chance to wonder just what I was up to.
6:40 to 9:30. Got to Taylor bakery for doughnut holes, a constant at our house. to two early Friday morning, one mostly devoted to Butler BB, the other a meeting of St Luke's UMC members and seldom devoted to church. Usually I then stop by Meridian Hills to hassle Jim Hess and his crew, but I had jus enough energy to get back home.
9:30 to 5:30 lousy day.
5:30 to 9:00 Karen off to yoga - good for her. Mary Ann finally got her hair cut earlier, too short she says, I like it. She went out for a sandwich we shared, tasted great and all of a sudden, not too sudden for her, I was feeling much better, had a good walk, visited with some neighbors, and off to bed at 9:00.
Now it is today, 8:45. I suspect you saw all the above because I feel good, who knows what tonight will bring. That plus, as I mentioned above, good for my "memory" or lack thereof. Soon off to a local farmers market, then a try at staying awake for an early lunch, then a nap with my heating pad. After the nap, another highlight - watching for the mail to see if we get anything other than ads and bills.
If you got this far. I feel for you - better get a life! At least it is not in your inbox. And, as I have said, I have lots of time for email - have at it.
This one is going to be more disjointed, more off on tangents, and clearly too long. Fortunately, you can bug off if you haven't already. I am asked from time-to-time what my days are like. I know that is often similar to the greeting "how are you" hoping not to hear, but I am using the possibility of sincerity to answer with a days (yesterday) activity. If nothing else, since yesterday was a weekly steroid fix, I can look back next week to see what I did wrong - my short term memory is good, I almost always know exactly where I put my phone down, long term i.e. a day or so, not so good. So, here goes yesterday.
2:15 am out of bed. Unreasonable as that may seem I have had 5+ hours of sleep, same as pre MM. no discomfort.
2:15 to 3:30 Noticing some rib discomfort. Reading emails. Reading The Christian Agnostic the book just chosen by the Wednesday group with whom I hope to get back to soon. I mention the book because above my computer I have affixed two cites expressing principles I try to follow - one is from The Christian Agnostic, plus I have been so called by a professor at Christian Theological Seminary. I usually disagree with her, she usually humors me.
3:30 Steroid fix.
3:30 to 5;00 Reading the Indianapolis Star, including a glance at obits (started well before MM) and the internet versions of the New York Times and the Boston Globe - I frequently watch Fox news to get the other side. I just noticed that the Times is selling the Globe to the owner of the Boston Red Sox for $70 million, having purchased it for $1.3 billion in 1993. Goes to show the Times makes big mistakes, and that, despite all the prohibited drug problems, baseball is in much better shape than newspapers.
5:00 to 5:30 Breakfast with the comics, which I understand, mostly, the bridge column which I often don't, and the crossword which I do as far s possible without writing - can't handle a spoon and a pencil at the same time.
5:30 to 6:00 I usually work in a quick nap at this juncture, thus getting out of bed like normal folks, but no such yesterday. Must have been an effect from the steroids as expected, or my thinking it was that, which is about the same.
6:00 to 6:40 Brushed my teeth which I mention only to note that I am unable to do that wrong handed no matter the effort to be careful with the right side fracture, shaved (same as brushing) showered (often the highlight of my day) dressed, and frisky with steroids skipped out before my caregiver had a chance to wonder just what I was up to.
6:40 to 9:30. Got to Taylor bakery for doughnut holes, a constant at our house. to two early Friday morning, one mostly devoted to Butler BB, the other a meeting of St Luke's UMC members and seldom devoted to church. Usually I then stop by Meridian Hills to hassle Jim Hess and his crew, but I had jus enough energy to get back home.
9:30 to 5:30 lousy day.
5:30 to 9:00 Karen off to yoga - good for her. Mary Ann finally got her hair cut earlier, too short she says, I like it. She went out for a sandwich we shared, tasted great and all of a sudden, not too sudden for her, I was feeling much better, had a good walk, visited with some neighbors, and off to bed at 9:00.
Now it is today, 8:45. I suspect you saw all the above because I feel good, who knows what tonight will bring. That plus, as I mentioned above, good for my "memory" or lack thereof. Soon off to a local farmers market, then a try at staying awake for an early lunch, then a nap with my heating pad. After the nap, another highlight - watching for the mail to see if we get anything other than ads and bills.
If you got this far. I feel for you - better get a life! At least it is not in your inbox. And, as I have said, I have lots of time for email - have at it.
Thursday, August 1, 2013
Multiple Myeloma
8-1-13
Devoted most of Tuesday and yesterday to making certain we were here to accept the FedEx delivery of my second batch of revlimid pills. Finally, yesterday afternoon I drove to the pharmacy to get them, FedEx arrived late last evening - we refused that delivery.
So, back on the regimen starting last evening at dinner. I am up to 8 pills daily (13 the day I take the five steroids) with the one for nausea unnecessary and the vicodin when I feel the need. I may have to get a larger compartmentalized dispenser for a weekly program.
Feet better, no less tired, and rib causing the discomfort. When I showed Mary Ann and Karen the movement that caused pain, Karen suggested and Mary Ann agreed, "why don't you quit testing that movement to see if it gets better sooner?" I started to ask if that was medical advice but remembered once showing a neighbor doctor a movement that irritated a sore shoulder and she said "so quit the movement" and, even though she is a highly regarded dermatologist, seems to be that still qualifies as medical advice - I didn't question the ladies here.
I did slip out yesterday for a haircut, which, considering the cancer diagnosis, having the hair to cut is a plus. At least I think it is, but I have a good friend "twin" in Arizona who hasn't needed a hair cut for years; he has always said he was born first that fateful day years ago and God gave him a perfect head, had to cover mine with hair. No one seems to argue with him when he says it!
Talk to you later.
Devoted most of Tuesday and yesterday to making certain we were here to accept the FedEx delivery of my second batch of revlimid pills. Finally, yesterday afternoon I drove to the pharmacy to get them, FedEx arrived late last evening - we refused that delivery.
So, back on the regimen starting last evening at dinner. I am up to 8 pills daily (13 the day I take the five steroids) with the one for nausea unnecessary and the vicodin when I feel the need. I may have to get a larger compartmentalized dispenser for a weekly program.
Feet better, no less tired, and rib causing the discomfort. When I showed Mary Ann and Karen the movement that caused pain, Karen suggested and Mary Ann agreed, "why don't you quit testing that movement to see if it gets better sooner?" I started to ask if that was medical advice but remembered once showing a neighbor doctor a movement that irritated a sore shoulder and she said "so quit the movement" and, even though she is a highly regarded dermatologist, seems to be that still qualifies as medical advice - I didn't question the ladies here.
I did slip out yesterday for a haircut, which, considering the cancer diagnosis, having the hair to cut is a plus. At least I think it is, but I have a good friend "twin" in Arizona who hasn't needed a hair cut for years; he has always said he was born first that fateful day years ago and God gave him a perfect head, had to cover mine with hair. No one seems to argue with him when he says it!
Talk to you later.
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