Multiple Myeloma

8-3-13

This one is going to be more disjointed, more off on tangents, and clearly too long.  Fortunately, you can bug off if you haven't already.  I am asked from time-to-time what my days are like.  I know that is often similar to the greeting "how are you" hoping not to hear, but I am using the possibility of sincerity to answer with a days (yesterday) activity.  If nothing else, since yesterday was a weekly steroid fix, I can look back next week to see what I did wrong - my short term memory is good, I almost always know exactly where I put my phone down, long term i.e. a day or so, not so good. So, here goes yesterday.

2:15 am out of bed. Unreasonable as that may seem I have had 5+ hours of sleep, same as pre MM. no discomfort.

2:15 to 3:30  Noticing some rib discomfort.  Reading emails.  Reading The Christian Agnostic the book just chosen by the Wednesday group with whom I hope to get back to soon.  I mention the book because above my computer I have affixed two cites expressing principles I try to follow - one is from The Christian Agnostic, plus I have been so called by a professor at Christian Theological Seminary.  I usually disagree with her, she usually humors me.

3:30  Steroid fix.

3:30 to 5;00 Reading the Indianapolis Star, including a glance at obits (started well before MM) and the internet versions of the New York Times and the Boston Globe - I frequently watch Fox news to get the other side.  I just noticed that the Times is selling the Globe to the owner of the Boston Red Sox for $70 million, having purchased it for $1.3 billion in 1993.  Goes to show the Times makes big mistakes, and that, despite all the prohibited drug problems, baseball is in much better shape than newspapers.

5:00 to 5:30  Breakfast with the comics, which I understand, mostly, the bridge column which I often don't, and the crossword which I do as far s possible without writing - can't handle a spoon and a pencil at the same time.

5:30 to 6:00 I usually work in a quick nap at this juncture, thus getting out of bed like normal folks, but no such yesterday.  Must have been an effect from the steroids as expected, or my thinking it was that, which is about the same.

6:00 to 6:40 Brushed my teeth which I mention only to note that I am unable to do that wrong handed no matter the effort to be careful with the right side fracture, shaved (same as brushing) showered (often the highlight of my day) dressed, and frisky with steroids skipped out before my caregiver had a chance to wonder just what I was up to.

6:40 to 9:30. Got to Taylor bakery for doughnut holes, a constant at our house. to two early Friday morning, one mostly devoted to Butler BB, the other a meeting of St Luke's UMC members and seldom devoted to church.  Usually I then stop by Meridian Hills to hassle Jim Hess and his crew, but I had jus enough  energy to get back home.

9:30 to 5:30 lousy day.

5:30 to 9:00 Karen off to yoga - good for her.  Mary Ann finally got her hair cut earlier, too short she says, I like it.  She went out for a sandwich we shared, tasted great and all of a sudden, not too sudden for her, I was feeling much better, had a good walk, visited with some neighbors, and off to bed at 9:00.


Now it is today, 8:45.  I suspect you saw all the above because I feel good, who knows what tonight will bring.  That plus, as I mentioned above, good for my "memory" or lack thereof.  Soon off to a local farmers market, then a try at staying awake for an early lunch, then a nap with my heating pad. After the nap, another highlight - watching for the mail to see if we get anything other than ads and bills.

If you got this far. I feel for you - better get a life!  At least it is not in your inbox.  And, as I have said, I have lots of time for email - have at it.