8-24-13
3+ days I have been off the meds, and that is the only change - not taking pills. I am no less tired, my feet numbness is up and down, and I have my fuzzy head moments.
I don't know what I expected last Wednesday (as I have mentioned, my long term memory is lacking) but it was not just more of the same. Having attributed my symptoms to age, to the disease, and to treatment of the disease, apparently only the last can to some extent be eliminated.
Had the blood tests again yesterday, all are good. While there I spoke with Tammy - supervisor of nursing - who suggested coming down from the steroids might be another cause of my symptoms. She also said she was going to order another 21 day supply of revlimid, which will give me another opportunity to explain my physical activities - thank goodness they don't require Mary Ann's confirmation.
I see Dr. Milton on Tuesday. Possibly I will have a more learned idea of where this is all headed. Then, I will start the third 21 day regimen, after which I hope to have a biopsy or two to see if there has been any change in the myeloma.
As someone once said, it is a wearisome disease to preserve health by too strict a regimen, but I will keep at it.
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