Multiple Myeloma

12-24-13

Nothing new to say about MM except, compared to the recent deaths of good friends and serious sicknesses of others, I am blessed.

Enough about that; I decided to take a moment of your time to wish you a very Merry Christmas.  I don't know who you are (haven't figured out how to do that) but my good wishes for you are no less sincere.

Mary Ann tells me we are having 32 here tomorrow.  I can count 27 or so, name most of those, will be interested in seeing the others.

Have a great New Year, too.

Multiple Myeloma

12-18-13

Good visit with Dr. Abonour today.

About 40 blood tests, all within normal range except Hgb ( hemoglobin I think) slightly low, not enough to be concerned, just need to eat more steak and hamburger.  I need more diagnoses like that.

PET scan showed one small spot on a right rib, which may not be myeloma, all other spots are gone.  Not to worry about the one.

So, started tonight the two week regimen of revlimid and related drugs.  Back for blood tests on January 6, don't need to see Dr. Abonour until February 19. 

I did get another testosterone shot; Mary Ann and I believe they are helping relive the fatigue.  I suggested no vacuuming yet, nurses did not seem to agree.

Concerning the feet discomfort, others with MM have had similar problems, so relief may just take time.  Since walking and standing, but for a stagger now and then, are OK, should have no problem with golf next spring.

I doubt there will be much to say about MM for a while since I am in remission.  I might get back to this from time-to-time on other matters, like the Affordable Care Act, or same-sex marriage, or other non controversial matters.  Feel free to correct me at kbwilson@comcast.net.

Multiple Myeloma

12-16-13

Just noticed the blog two back was 1-13-13 - wonder what I was thinking as I typed.

Multiple Myeloma

12-16-13

Up at 3am yesterday, airport by 6, to D.C. for a memorial service for a good friend, back to the airport there and on a plane to Indianapolis by 4:30 - all without a nap and doing well;  Those at the service saw no evidence of Multiple Myeloma.

Reading on the plane back, entire body asleep but for right foot and leg which in essence controlled.  I walked the aisle three times to see if I could eliminate the foot and leg nervousness, no such luck.  Otherwise doing well, home by 7:15, in bed by 8:15, asleep despite feet discomfort by 8:17 or so, not up this morning until 3:30 - over seven hours good for me.

I see Dr. Abonour Wednesday.  I will tell him about the airplane foot and leg problem.  I hope to learn the extent to which MM or the meds therefor contribute to the problem.  I am ready to admit some of problem may be age, even mental, but I continue to believe MM does not help.

Back here after the Wednesday visit.

Multiple Myeloma

1-13-13

Hard to believe I have not blogged in December, but if I am able to get to my latest which might be suspect, I haven't.  A couple of my followers who apparently have time for this nonsense or, more likely, enjoy a jab now and then, asked if I could still type.

Not much to report.  Blood tests indicate remission.  I had a PET scan earlier this week, will get the results from Dr. Abonour next Wednesday, but informal report from his nurse said there appear to be no problems.  In other words, good news.

Mary Ann not doing as well.  Her problems: me, of course; simple compression fracture of L-(I forget the number) and her Dr. says not to worry, he will see her again the next week or so; and an eye that feels as though there is sand on the eyeball most of the time, that Dr. says Ok to try drops every 5 minutes or so - she is about ready for another opinion.  Further, her spouse is not as helpful as mine.

I will come back here next Wednesday after the visit with Dr. Abonour.  Until then, barring unforeseen problems, I won't take up you time.  Compared to some of the problems some of my good friends are having, mine can be considered a minor cold, with fatigue.  

Multiple Myeloma

11-28-13

Early Thanksgiving morning, no turkey smell for the first time in my memory.  But that is good, some of the gang have other obligations today so they are going to descend here tomorrow - how many no one knows for certain.

Not much to report on MM.  I continue with meds, with fatigue and feet discomfort, but both seem to be lessening.  Last blood tests were favorable, on 12-10 I will have a PET scan to see if spots remain.

More severe just now is Mary Ann's back problem.  She had a MRI yesterday, should hear from Doc on Monday to get prognosis, and, we hope, suggested treatment.  Watching the two of us get up after sitting for a while is almost amusing.

If you are reading this today, I hope you are having a fine Thanksgiving without too much borborgymus. If tomorrow or later, I trust you had the same.

Despite our medical problems, we know the disorganized bedlam tomorrow will be fun for all, plus I have been given advance permission to crash upstairs.

Multiple Myeloma

11-21-13

Saw Dr. Abonour yesterday.  Blood tests indicate remission, will get a PET scan next month to see if any spots remain.  Starting two week regimen this evening - preventative.

Also 30 minute zometa infusion and testosterone shot yesterday.  Probably mental, but I seem a bit less fatigued today - out and about this morning, may get out for dinner.

In addition to gabapentin for feet, am getting some kind of lotion to help with the feet problem.  Neither Mary Ann nor I can imagine what the lotion is, but Abonour prescribed so I will try it.

As someone before me said, if you think health care is expensive now, wait until you see what it costs when it is free.

Multiple Myeloma

11-13-13

At my annual physical my internist prescribed gabapentin to see if it would ease my feet problems.  My neurologist agreed, as did Dr. Abonour's nurse after discussion with him.  So, after working up to three 100 MG/day, I am experiencing some relief - hoping for continuation.

Fatigue continues, maybe more on that when I see Dr. Abonour next week.

Next Monday I am going back to my fitness guru to see how much flexibility and strength I have lost.  My neurologist, who also goes to her, suggested I get back at it. I hope not to be embarrassed.
Incidentally, the fitness guru also helps with my golf swing, but has yet to get me to match her driving distance.

Remember, a truly happy person is one who can enjoy the scenery on a detour.

Multiple Myeloma

11-3-13

Haven't had much to say lately, as you regulars may have noticed.  Last Wednesday was one of the best days I have had since the treatment regimens started.  Then, on Thursday, I awoke with swollen angles, the left slightly larger than the right.  Here it is Sunday, the ankles are still swollen, my feet bother me constantly, but I get out and about for a few hours each day - even get some work done out side. 

I will finish the first two week on period on Wednesday, then two weeks without drugs.  During the latter two weeks I will see Dr. Abonour and, I hope, get an idea of what the future holds.

Tomorrow, though, I will see my regular physician for an annual physical.  I don't know how that will go since I am under the care of Dr. Abonour.  I do intend to talk about my ankles and feet.

Whatever will be, will be.

Multiple Myeloma

10-27-13

Yesterday and today, days 3 & 4 of my resumption of meds, about the same, no improvement with feet and fatigue.  That is as expected.  After I see the doctor in November, I may return to my neurologist re my feet, and the testosterone boost from shots will take some time to help with fatigue.  I continue to nap well and often.  Resuming the meds has a negative effect on my digestive system, again, not unexpected. 

At our Friday coffee klatch, I was pleased to learn that my shirts are not the only ones with shrinking button holes and expanding buttons.  That we are in the same age group may have some effect on the buttoning of shirts.

I am trying to avoid having my sole purpose in life to serve as a warning to others.

Multiple Myeloma

10-26-13

Started my new regimen at dinner last evening, two weeks on, then two weeks off, less severe revlimid, no steroids. 

Awoke this morning feeling good, made the Friday coffee klatch, began feeling a bit light headed, came home and was asleep by 10.  Since then, felt lousy until about an hour ago, now much better, and we are going out for dinner.

I did have some problems getting to this page, fortunately hooked to my guru, Andy Dietz, and here I am.  If you ever need help with your smart phone or your PC, I can give you Andy's number, he is very helpful and reasonable.  email me at kbwilson@comcast.net.

I am hoping the difficulty today is not going to recur every day, that it resulted from getting back on the drugs - time will tell.  I try to keep my words soft and sweet in case I later have to eat them.

Multiple Myeloma

10-24-13

Last Monday, 10-21, I received a shot to begin the restoration of my very low testosterone due to MM, the treatment of MM, and to my advanced age.  The intent and my hope is that monthly shots will reduce my extreme fatigue, not so much, however, to allow vacuuming.

This evening I will begin a new treatment regimen of two weeks on, two weeks off.  I will not be taking the steroid hit, and the revlimid dosage will be 40% less.  Those changes may also help with the fatigue.

My feet problem continues.

After this two week regimen I will meet with Dr. Abonour.  You may note that I have changed Doctors which could indicate dissatisfaction with Dr. Milton.  Not so.

Mary Ann and I are very pleased with Dr. Milton, with Tammy Linback, Nursing Manager, and the others at HOI.  We should be, they got me to remission.  We would recommend them without reservation.

We changed to Dr. Abonour, who devotes 100% of his time to MM, and to get into the IU Health System.  We believe that is best for us at this juncture.

In other words, change for positives, not from negatives.

I will after a few days in the new regimen return to the blog.  In the interim, we are not bemoaning the presence of MM, we are enjoying the success to date of the treatment.  We have known all along MM is not curable, but treatable.

Multiple Myeloma

10-17-13

This afternoon I received an email with four pages of blood test results, only one of which I understand, because only one is significant.  My testosterone is very low, probably due to the treatment I have been undergoing.  I will get a shot on Monday morning, monthly thereafter.  That should decrease my fatigue.

More important, my MM is in remission.  Not cured, but under control, as I understand it. 

For a number of reasons, not due to any dissatisfaction with Dr. Milton, Mary Ann and I have decided to continue with Dr. Abonour, who devotes all of his time to MM.  Dr. Abonour is with the IU Simon Cancer Center.  We met with him last Monday - a good visit.

Since I am in remission, my continued treatment will change.  My revlimid dosage will decrease by 40%.  I will not continue the steroid dosage.  Both of those changes should also decrease my fatigue - I may have to help around here.  I suspect this treatment to continue indefinitely.

This, obviously, is good news.  I don't feel a bit better tonight, but expect to soon.

Multiple Myeloma

10-15-13

Yesterday was the expected crash-from-steroid day with the usual symptoms.  It also was the day Mary Ann hauled me to the IU Simon Cancer Center to get a second opinion from Dr. Abonour.

We were very impressed, not only in general, but specifically by Dr. Abonour's thoughts about my continuing treatment, which he will share with Dr. Milton later this week. Dr. Abonour will in the interim evaluate many tests from the six capsules of blood they took yesterday, and share those with Dr. Milton.

I will finish a 21 day regimen with Dr. Milton this week and will see him next Tuesday.  We will then decide how we want to proceed.

At this point, Mary Ann and I are most pleased with the expectations given us by Dr. Abonour.  More on that later as we hear more.

Multiple Myeloma

10-13-13

This may be convoluted - I am crashing.

A strange week.  Monday and Tuesday were the usual crash days.  Then Wednesday through Saturday, although I was up and out, made my meetings, helped Mary Ann and Karen get the back yard ready for winter, I was what I call light-headed every day.  I was able to drive, hit no one nor anything, but never felt quite right.  I have had some light-headed days for many years, many tests revealed no medical problems, so the past week may not have been due to MM.

Mary Ann and I watched church on my PC this morning, did some brief shopping, and went to a neighbor's1:30 football game (he is a fine player), came home, and I lay down for a few moments before Payton's game.  Three hours later, I awoke at halftime of the game and the steroid high from the Saturday morning hit was over - I have crashed.

Tomorrow Mary Ann will take me to the I.U. Simon Cancer Center for a second opinion. I don't expect any different opinion for treatment, time will tell.

We won't know much tomorrow evening but I will try to report the day.

Multiple Myeloma

10-12-13

The past two or three days have been a bit difficult.  Although I have been up and about, meeting with my Wednesday and Friday groups, having lunch with Laura, enjoying Beth's visit here, working out side to prepare for winter, I have not been "normal", whatever that is these days.  I have been less than steady walking, and I have been fuzzy headed most of the time, something like having a head cold causing a little confusion.

When I have breakfast, I will take my weekly steroid hit, which usually results in two "up" days.  I am hoping that happens later today.

Through circumstances too complicated to mention, I am getting a second opinion next week.  I have an appointment on Monday at the I.U. Simon Cancer Center for an evaluation by Dr. Rafat Abonour, whose specialty is MM, and who is an acknowledged expert.  The opinion is not because of any concern I have with Dr. Milton, nor with the results of my treatment to date.  I am, however, interested in what Dr. Abonour will have to say.  More on that later.

Multiple Myeloma

10-11-13

All things considered, much activity yesterday.  I met with the Wednesday group, came home to find Mary Ann preparing the back deck and pool area for closing.  Helped a bit, had a bite of lunch, rested, and then as Pool Care closed the pool, began putting summer furniture away for the winter.  All told, more than seven hours of up and about - even some heavy lifting.

So, today, not likely to get much outside work done.  We are meeting Laura for lunch, Beth is stopping by later, and since my MM treatment does not cause my hair to disappear, I plan to get it cut.  That, after yesterday, will probably be my activity for the day.

Multiple Myeloma

10-9-13

Yesterday, Tuesday, the second day of the crash, ended a bit better than Monday, but started poorly.  After all the sleep Monday, including more than 8 hours Monday night, I awoke befuddled and unable to walk straight - interested only in lying down.  By late afternoon, Mary Ann and I were able to get some of the pool area ready for closing, which is to happen today.  By bedtime, rather than report here as I said on Monday I would, I went on to bed.  Hence, this early morning musing.

We don't talk much about cancer.  We did, at dinner, observe that, until my diagnosis, we were unaware of Multiple Myeloma, and now just follow the Dr's instructions without question.  As I mentioned earlier, I asked about some relief from the "crash scene" and got a smiling "sorry."

This morning, back to normal, normal for one with MM.  That means, if I don't try to move or turn too quickly, I don't appear to have cancer.  I hope to make the Wednesday morning group meeting.  There, I am the iconoclast, but that was my role long before MM.  We have been reading "The Christian Agnostic" - one of the members suggested  that I am one!

Multiple Myeloma

10-7-13

Crash.  I have been asleep most of this day, which is good since when I am awake, what limited patience I have is constantly being tested. 

My favorite proverb "When words are many, transgression is not lacking. but the prudent are restrained in speech" seems appropriate, so I will be back tomorrow.

Multiple Myeloma

12-6-13

Two good steroid days.  Yesterday, Saturday, some work outside, a movie in the afternoon, brought dinner home.

Today, church, brunch, and football - too much football actually.

About the only difficulty I have on steroid days is a bit of a stumble, particularly when I turn too quickly.

Tomorrow, who knows, but past experience suggests a crash, a sleep filled day.   I will try to report.

Multiple Myeloma

10-5-13

Rather than taking my steroid hit on Friday morning which in the past has made Friday and Saturday good days, Sunday and Monday losers, I decided to wait until Saturday (today) for the hit, making today and tomorrow good days, saving the losers for Monday and Tuesday.  So, at 5am, 5 pills down.

Although probably not due to that change, all day yesterday, Friday, was a loser, almost as though my body was telling me it was due for a boost.  I did not get comfortable until I crawled into bed around 8:30.  I doubt I will go more than a week without the boost from now on.

I have described those loser days before, but I repeat:  I don't enjoy living with myself, nor am I any fun for Mary Ann and Karen who want to help, but can't.  I try to stay in my "cave" as much as possible.

Today and tomorrow will be interesting - I hope good.

MUltiple Myeloma

10-2-13

Having self-imposed a restriction on talking about constants, not much to relate.  I have been out and about each day this week, not for long, but reasonably normal, whatever that means. 

I did drive Mary Ann to a scheduled stress test, but I left to run errands - concerned they might say I was all the stress she could handle.  She passed.

Just got a flu shot which Dr. Milton strongly encouraged.  First time I can recall having to answer a questionnaire with numerous admissions of cancer.  Most of the time I ignore having such.

I have never wished for the great golfing days of October to end quickly.  Almost do this year, so I won't be wanting to get out in the yard.

Multiple Myeloma

9-29-13

Recovered well from the regimen start-up and had a really good day today.  About the only evidence of my cancer on a day like today is my uneven walking - I don't walk a straight line.

Made it to church and brunch, then watched too much football, didn't get my usual nap, but I am still awake and reasonably alert.  We will see what tomorrow brings.

Multiple Myeloma

9-28-13

Following yesterday's start-up, today was not one of my better days.  After a restless night, I staggered about most of the day, did not have an appetite, and was mostly useless.  I went back through the blog (not recommended) and found the day after the start-up has before been less than delightful.  At least I was not zombie like as I am crashing from the steroid hits. 

Tomorrow will be better.

Multiple Myeloma

9-28-13

After a rather pleasant recess, yesterday began another 21 day regimen of revlimid with a few dexamethasone (steroid) hits along the way.  Since the last regimen resulted in the favorable results I mentioned earlier, I wondered aloud with Dr. Milton if we might decrease the steroid hit - no such luck.  He did give me some scheduling alternatives, but somewhere along the way I expect some days will have me appearing drunk and zombie like, which some of my "good" friends have wondered how to notice the difference.  Incidentally, there was no hint by the good doctor as to when, or even if, the regimens might stop for a while, although he did say we probably could go to Rome or some such place in the future without taking more pills than clothes.

I do hope to add, better, to subtract, from these musings.  Being tired and having numb feet is a given, and (I haven't read back to check) mentioned often if not always.  I see no reason to clutter this message with givens, so, unless there is a substantial change in either, no more about feet nor tired.  I do recognize, as others remind me, that the latter might be as much due to age!

Further, although I am not much inclined for mind over matter, belief over fact, I have noticed that I forget feet and tired when I am busy doing something other than sitting on the front porch - maybe, despite a bit of embarrassment, I just use both to enjoy having my neighbor across the street blow away my leaves since she does a better job of it than I do.

Multiple Myeloma

9-24-13

Back when this all started with numbness in my feet, Dr. French, neurologist, saw a unusual protein level in my blood.  He immediately referred me to Dr. Milton, an oncologist with Hematology-Oncology of Indiana (HOI).  Dr. Milton had me tested for bone myeloma and bone marrow myeloma, both negative.  Finally, a PET scan (whatever that is) revealed the multiple myeloma.  In other words, my MM was difficult to diagnose and unusual.

This afternoon Mary Ann and I met with Dr. Milton to hear the results of the third 21 day regimen of revlimid and dexamethasone.  The results are remarkable.  I can't give the technical explanation, suffice it to say the high negative levels have decreased considerably, really considerably.

As soon as I can get another 21 days of revlimid, I will start another regimen.  There is no need for an interim blood test, just for the labs again on October 17 prior to seeing Dr. Milton again on October 22.

The tiredness will continue but may get less severe.  The up and down from dexamethasone (steroid) will not ease, but considering the above results, so be it.

Dr. Milton is pleased, so are we.

Multiple Myeloma

9-22-13

But for the start and finish, yesterday was a good day.

The start was marred by Karen's having to take Mary Ann to the ER to deal with her swollen throat to the extent that she could not talk.  Apparently she had a reaction to a new script.  ER treatment was successful, they returned home, and Mary Ann was able to catch up with sleep lost during the night.

The finish wasn't really bad, it should have been expected.  After the activity described below, as I drove into the garage, I realized I needed to get to bed - almost too tired to get into the house.  So, to bed I went.

In the interim, Mary Ann and I were able to get to Meridian Hills to wish a happy 90th birthday to Frank Swingle.  We didn't stay long but we were able to say hello to his family (a special group for us), and to others there to honor him. 

We then decided to dine out, a rare event for us these days - enjoyed a fine meal, saw Jay, another special friend.

MM is a different form of cancer, not obvious to an observer.  When I am reasonably mobile and not wobbling due to feet numbness, observers with surprise see me as no different from before the diagnosis and treatment (tired is hard to see.)  Jay expressed it well, saying I looked normal.  He made sure I understood that didn't mean "good", just normal.  I suppose normal is better than sick.

Whatever will be, will be.

Multiple Myeloma

9-21-13

This is an attempt to update this blog for the past three days.  Unfortunately, that requires long term memory, with which I have difficulty, but so be it.

But for some unsteady walking, by Wednesday I felt free from the steroid crash and had lunch with three good friends, a gathering I hope can continue in the future.  I returned home and had the longest and deepest nap I can recall.  I awoke with what I can only describe as "blahs" - not very pleasant.  I did at dinner finish off the third 21 day regimen.

Thursday and Friday were both blah days - bad enough that I could not drive.  Mary Ann took me to the Dr.'s office on Friday afternoon, where I gave the blood for tests we will discuss with Dr. Milton next Tuesday.  The routine tests, oxygen, blood pressure, temperature, and pulse were excellent.  Compared to many there, I looked the picture of health - not a pretty picture but s healthy one.

Now early Saturday morning, the blahs seem to have gone, and I am hoping to be able this evening to attend a 90th birthday party for Frank Swingle.  Frank has been a good friend and often a good adviser for my activities at Meridian Hills. 

I don't know the extent to which the blahs of recent days can be attributed to my treatments, to having been off the regimen since Wednesday.  Maybe we will know more on Tuesday.

Multiple Myeloma

9-17-13

Yesterday, day two of the steroid crash, was as expected, a washout.  About all I wanted to do, about all I did, was crawl into a warm bed and sleep.

Today, much better.  Mary Ann drove to Costco and I survived that experience, the shopping, that is.

Tomorrow, lunch out with three good friends, an outing I enjoy.  Tomorrow evening, I end this 21 day regimen, Friday unload blood, and next Tuesday, see Dr. Milton.

Someone once said the sickness of the body may prove the health of the mind - we can always hope.

Multiple Myeloma

9-15-13

Yesterday, Saturday, after the steroid hit on Friday, was a good day.  Mary Ann and I stopped by the farmers market, drove to Columbus to see the Stroh renovation, had lunch at the well known ice cream parlor, and were back home in time for a good nap.  Then, the crash began.

This morning I am walking slowly, a bit fuzzy headed (which might be obvious) and expect to stay close to the couch all day.  This 21 day regimen ends Wednesday, labs and another steroid hit on Friday, and visit with Dr. Milton next Tuesday. 

As an aside, I heard yesterday that the most shop-lifted book in the U.S. is the Bible.  Considering that all the surveys I have seen recently say most of us have a Bible but few of us read it, I wonder where the stolen copies go. 

Multiple Myeloma

9-13-13

Apparently I cannot predict the ups and downs from the steroid hits from one week to the next.

Last Friday we were in Wabash, having dinner with the Matterns and I was doing well.  On Saturday we met with Mary Ann's classmates for lunch, again I was doing well.  Sunday and Monday I crashed, Tuesday, after those two days, I was back to "normal" (whatever that is)  and had a brief visit with my derm Doc to see if I need any zaps - I didn't. I had lunch out, back home for my afternoon nap.  Then, Wed. and Thur. I was back into crash mode, not so severe, but not normal - my feet were bothering me more than they had for sometime.

This morning I took the steroid hit for this week.  The up seems to be happening, and tomorrow might again be a good day, but I am not making any plans - as I have often said, whatever will be, will be. 

I see the surprise on the faces of those who know I have MM but when seeing me for the first time notice that I don't look sick - not that I look good, that is another matter, but not sick.  I often have to explain that I stagger a bit due to the feet problem, and I am very tired - but those in my age bracket often say, well of course.

I will report tomorrow if the day after the hit results, as it has in the past, in a good day.  I am certain it will not be good enough to work in the yard, but we might get out and about for a few hours.  I am also certain I would be a lousy caregiver, and I don't know how Mary Ann does it.

Multiple Myeloma

9-12-13

Strange day yesterday (Wed.)  On Tuesday I had (I thought) recovered from the downtime resulting from the steroids, so I decided I would join the Wednesday group.  I made a few stops and arrived a bit before 9:30.  By 10:30 I felt like I was back in the steroid downtime, fuzzy headed, feet bothersome, and more tired than normal.  That continued until bedtime.

This morning (Thursday) for the first time in all of this process, when I awakened, I lay in bed for a few minutes wondering what the day would bring.  Although the day has not begun for sensible people, I have been up for a couple of hours, still wondering what the day will bring.  Since I attribute how I feel somewhat to attitude (mind) I am taking this day an hour at a time, slowly, to see if I will avoid another downtime reaction.  Tomorrow, back to the steroids!

Multiple Myeloma

9-10-13

As expected, after the good Friday and Saturday at Wabash, coming down from the steroids Sunday and Monday was brutal - not pain, but fuzzy headed and very tired.  I am getting tired of saying how tired I am.

Did get to the Dr's office for routine blood tests yesterday afternoon, no negative report.

Multiple Myeloma

9-7-13

Took my steroid hit early yesterday, left after noon for a fine visit to Wabash.

Dinner with the Matterns, a good sleep in the Charley Creek Inn, lunch today with Mary Ann's high school class get-together, an annual event.  Started down off the steroids at the lunch, drove back to Indianapolis, had a brief nap, and probably am all the way down - very tired.

Having read some of the letters from MA's classmates unable to attend the lunch, and talking with many of those there, without discounting the severity of MM, I realize my symptoms and my limitations are little to complain about.  That may not keep me from complaining, but it should.

Multiple Myeloma

9-4-13

Nothing much new recently, except Monday when I could not stay awake for some reason, so I didn't try. 

Feet numb, but not as severe, or I am simply getting used to them.  Always tired, nothing new there.

I haven't gotten to the yard work, but I have been up, out, and about more.  Made the Wednesday group this morning, did some shopping, and Mary Ann and I went to Panera for dinner.

Hoping for a good Friday and Saturday in Wabash.

Multiple Myeloma

8-28-13

Having again aced the drug company's exam re my physical activities, lack thereof that is, I am back on the meds, have been for two days now.  Nothing much new, with the possible exception of my tiredness, which seems even more severe.  I now wonder if I should add to age, disease, and drugs, the cause of mental, although it may be memory - as noted, my long term is not very good.

We do have a big, for us, weekend coming up.  Next Friday we will have dinner in Wabash with some of the Mattern clan, then on Saturday have lunch with Mary Ann's class, which meets every year the Saturday after Labor Day.  During that time I will have the ups and downs of steroid treatment, which should be interesting.  Since a closed mind is a sign of hidden doubt, I will be open to whatever will be, will be.

Multiple Myeloma

8-23-13

Good, better than good, visit to Dr. Milton's office this afternoon.

Started with fine readings re blood pressure, pulse, oxygen, and temp.

I related to Dr. Milton in abbreviated form much of what I have been reporting on this blog.

He said: feet numbness - probably would persist for 6 months or so, and to be expected.
              tiredness - both from disease and medicine (he was kind enough not to add age.)
              steroid reaction - up and down normal.

He then said additional blood tests from Friday past were very good, significant reduction in protein level, the level that indicated MM a few months back.  He also reported another positive improvement the details of which I forget.

I asked about two other drugs I have read about.  He said both were good but  both had numbness as a by product - he thought I had enough numbness as it is.

Concerning my reactions to revlimid, the drug I am taking, he said he could reduce the dosage, would for most my age, but the results were so favorable he suggested staying at the higher level, at least for the next 21 day regimen.  Mary Ann and I agreed.

No need for a biopsy because apparent.

Had another 30 minute infusion of zometa for bone strength and left, tired but pleased.  Back to revlimid later this week.

Multiple Myeloma

8-24-13

3+ days I have been off the meds, and that is the only change - not taking pills.  I am no less tired, my feet numbness is up and down, and I have my fuzzy head moments.

I don't know what I expected last Wednesday (as I have mentioned, my long term memory is lacking) but it was not just more of the same.  Having attributed my symptoms to age, to the disease, and to treatment of the disease, apparently only the last can to some extent be eliminated.

Had the blood tests again yesterday, all are good.  While there I spoke with Tammy - supervisor of nursing - who suggested coming down from the steroids might be another cause of my symptoms.  She also said she was going to order another 21 day supply of revlimid, which will give me another opportunity to explain my physical activities - thank goodness they don't require Mary Ann's confirmation.

I see Dr. Milton on Tuesday.   Possibly I will have a more learned idea of where this is all headed.  Then, I will start the third 21 day regimen, after which I hope to have a biopsy or two to see if there has been any change in the myeloma.

As someone once said, it is a wearisome disease to preserve health by too strict a regimen, but I will keep at it.

Multiple Myeloma

8-21-13

Last evening at dinner I finished the second 21 day treatment regimen of revlimid and related pills.  I have another lab test on Friday, possibly another infusion of zometa for bone density (I can't spell osteoporosis) and see Dr. Milton on Tuesday, 8-27.  I anticipate him ordering another 21 day regimen at the end of which they will take a biopsy to see the consequences of the three regimens.

So, for one week I will not be on meds.  I am anxious to see what effect that will have on my bearing, to see if I am less tired, less fuzzy headed, more normal, whatever that means.  I doubt it will get me back working in the yard, but it might cause me to want to, which Mary Ann will discourage (that is a euphemism for "don't be silly".)  I also am hopeful that there will be a way to temper the two-day down time after the one day up from the steroids.

I hope not to spend so much time watching my health that I won't be able to enjoy what I have.

Multiple Myeloma

8-19-13

After our enjoyable visit to Columbus on Friday, Saturday and Sunday were difficult days - what I call coming down from steroids.  We did have a delightful visit yesterday with Clair and Cherry Law who stopped by on their way home from Ohio to Kansas.  They were kind enough not to notice my fuzzy demeanor and rather than reminisce about 40 years of association, we talked about the present and future.

Tomorrow I will end the second 21 day treatment regimen.  I probably will take another dose of steroids, have an up day, two down days, and soon thereafter begin the third regimen.  I think after that one, there will be a biopsy to see if the treatment has had any effect.

Right now, early Monday morning, I am normal, whatever that means.

Multiple Myeloma

8-16-13

Last Friday (8-9) I took my steroid fix mid-morning (I had forgotten earlier) and on Saturday awoke ready to take on the world.  As I reported earlier, I had a busy day, even did some work outside.  Then, Sunday, Monday, and a bit of Tuesday, I was zombie like - worthless.  There is the possibility that I took the steroid hit too soon after resuming the Revlimid program.

So this week, having been back on Revlimid for more than a week, I moved the steroids to Thursday morning, and awoke this morning, again with much energy.  But I did not take on the world, I rested until 10, then Mary Ann and I drove to Columbus, IN to meet with Mary Stroh, oldest g/child, attorney, who is helping us with our estate planning.  We then had lunch with Beth, John, Mary and Patrick, and went to see the house the four of them are renovating for Mary and Patrick to enjoy in the near future.  They have done a tremendous amount of work, excellent work, and we are anxious to see the finish.

Mary Ann and I returned to Indianapolis around 3, I immediately took my afternoon nap, and have just had dinner.  The steroids are wearing off, I am my usual lackluster 8 o'clock self, about ready to turn in.  Tomorrow we will see if I am in for another Zombie day or two.  More here tomorrow, I hope.

Multiple Myeloma

8-13-13

Haven't been here for a few days which I will try to explain as I get from last Friday to today.  Unfortunately, although my short term memory (an hour or so) seems OK, anything longer is suspect, which if nothing else means you won't have to read a lot of nonsense.

Friday  Up and out early, feeling frisky.  Got to the Friday group at Panera and realized it was my 5 pill steroid day so back home, swallowed the pills, and soon thereafter for the rest of the day was worthless - too tired to do much.  I had expected a different reaction, a burst of energy like the day the steroids had me driving around the golf course.  Truth is, I don't know how nor when they kick in - maybe the next day which was

Saturday  A really good day - maybe a delayed steroid kick in.  Very little foot numbness, no rib discomfort.  Finally finished putting up the bathroom fixtures, got to the farmers market and was able to last while Mary Ann visited with a former neighbor, which was not quick.  Even did a bit of shopping, bought an inexpensive work-in-the-yard watch thinking I might get some outside work done.  The watch keeps perfect time, twice daily, because it doesn't run, which might have been a omen for days to come.  Had the leaf blower going briefly, pulled some foreign growth in the front yard.  All was well, BUT

As I tried to log in to report, no internet connection - good ole Comcast. Many days I think about trying AT&T, our only alternative for internet, phone and TV, only to have someone tell me the problems they are having with them.  Furthermore, changing would be a monumental task, one I may not be up for.

Sunday  Awakened with numbness in both feet and in both legs up to my knees.  Fuzzy headed, could not walk straight, did not want to stay awake, and was slightly nauseous.  Lasted all day.  I was able to drive to Steak n Shake without incident for the only good taste of the day.

I did get back on the internet with help from a lady in Hawaii, who said as we were closing our conversation that she didn't know why Comcast had shut us down - neither did I.  Neither did she explain how she got us back on, nor was I in the mood to ask.  BUT

I could not get to this page to post.  Fortunately, I was able to reach Andy Dietz, our guru, who took over my PC remotely and resolved that problem, but I did not post - too tired.

Monday  Just like Sunday, fuzzy headed, foot and leg numbness, walking as though a bit drunk, and miserable.  No rib discomfort, though.

Today  A good start, some foot numbness, nothing in the legs, able to walk straight, had a good breakfast and am planning on a slow day but a much better one.  I suspect there may be no routine in all of this - might know more after visit with Doctor next week.

Too bad we can't make health catching rather than disease.

Multiple Myeloma

8-9-13

Haven't had much to post the past three days.  Up and about from early rising until after lunch nap.  Then up and frustrated that there is little I can do but complain that there is little I can do the rest of the day - at least little requiring physical activity.

So, this morning I decided to join the Friday Panera group after stopping by Meridian Hills to visit with Jim Hess, who has an employee available after work hours to help me with heavy lifting.  During our conversation I realized that today, Friday, is my steroid day - 5 pills.  I am, obviously, back home, have swallowed the pills, and awaiting my reaction thereto. 

I continue to have some discomfort with the rib, but not so much that I don't get irritated with inactivity.  I get sorrier and sorrier for Mary Ann having to deal with me.  She is hanging tough.

Multiple Myeloma

8-6-13

Yesterday and Sunday past were reasonably good days as the days go.  The times were mostly as I have explained.  From the second rising until after lunch, up and somewhat about - even accomplished a chore or two without resting.  Tired until dinner, a bit of a walk, then to bed.

Possibly the biggest problem is for Mary Ann having to put up with my irritation at not being able to do more.  I have my putter in the Tahoe with a few golf balls, thinking I might stop by a putting green somewhere - have not done so.

Today to this moment, more of the same.

Multiple Myeloma

8-4-13

Yesterday, after that ridiculously long blog of the morning, turned out to be a really good day.  Mary Ann and I got to the farmer's market, to Wild Birds, and to Costco; Karen got to yoga.  We had a good lunch and dinner.  But for a bit of discomfort with the rib, no other problems - only a slight foot numbness and no dizziness.

Hoping for the same today - quit watching my health so much that I don't have time to enjoy it.

Multiple Myeloma

8-3-13

This one is going to be more disjointed, more off on tangents, and clearly too long.  Fortunately, you can bug off if you haven't already.  I am asked from time-to-time what my days are like.  I know that is often similar to the greeting "how are you" hoping not to hear, but I am using the possibility of sincerity to answer with a days (yesterday) activity.  If nothing else, since yesterday was a weekly steroid fix, I can look back next week to see what I did wrong - my short term memory is good, I almost always know exactly where I put my phone down, long term i.e. a day or so, not so good. So, here goes yesterday.

2:15 am out of bed. Unreasonable as that may seem I have had 5+ hours of sleep, same as pre MM. no discomfort.

2:15 to 3:30  Noticing some rib discomfort.  Reading emails.  Reading The Christian Agnostic the book just chosen by the Wednesday group with whom I hope to get back to soon.  I mention the book because above my computer I have affixed two cites expressing principles I try to follow - one is from The Christian Agnostic, plus I have been so called by a professor at Christian Theological Seminary.  I usually disagree with her, she usually humors me.

3:30  Steroid fix.

3:30 to 5;00 Reading the Indianapolis Star, including a glance at obits (started well before MM) and the internet versions of the New York Times and the Boston Globe - I frequently watch Fox news to get the other side.  I just noticed that the Times is selling the Globe to the owner of the Boston Red Sox for $70 million, having purchased it for $1.3 billion in 1993.  Goes to show the Times makes big mistakes, and that, despite all the prohibited drug problems, baseball is in much better shape than newspapers.

5:00 to 5:30  Breakfast with the comics, which I understand, mostly, the bridge column which I often don't, and the crossword which I do as far s possible without writing - can't handle a spoon and a pencil at the same time.

5:30 to 6:00 I usually work in a quick nap at this juncture, thus getting out of bed like normal folks, but no such yesterday.  Must have been an effect from the steroids as expected, or my thinking it was that, which is about the same.

6:00 to 6:40 Brushed my teeth which I mention only to note that I am unable to do that wrong handed no matter the effort to be careful with the right side fracture, shaved (same as brushing) showered (often the highlight of my day) dressed, and frisky with steroids skipped out before my caregiver had a chance to wonder just what I was up to.

6:40 to 9:30. Got to Taylor bakery for doughnut holes, a constant at our house. to two early Friday morning, one mostly devoted to Butler BB, the other a meeting of St Luke's UMC members and seldom devoted to church.  Usually I then stop by Meridian Hills to hassle Jim Hess and his crew, but I had jus enough  energy to get back home.

9:30 to 5:30 lousy day.

5:30 to 9:00 Karen off to yoga - good for her.  Mary Ann finally got her hair cut earlier, too short she says, I like it.  She went out for a sandwich we shared, tasted great and all of a sudden, not too sudden for her, I was feeling much better, had a good walk, visited with some neighbors, and off to bed at 9:00.


Now it is today, 8:45.  I suspect you saw all the above because I feel good, who knows what tonight will bring.  That plus, as I mentioned above, good for my "memory" or lack thereof.  Soon off to a local farmers market, then a try at staying awake for an early lunch, then a nap with my heating pad. After the nap, another highlight - watching for the mail to see if we get anything other than ads and bills.

If you got this far. I feel for you - better get a life!  At least it is not in your inbox.  And, as I have said, I have lots of time for email - have at it.

Multiple Myeloma

8-1-13

Devoted most of Tuesday and yesterday to making certain we were here to accept the FedEx delivery of my second batch of revlimid pills.  Finally, yesterday afternoon I drove to the pharmacy to get them, FedEx arrived late last evening - we refused that delivery.

So, back on the regimen starting last evening at dinner.  I am up to 8 pills daily (13 the day I take the five steroids) with the one for nausea unnecessary and the vicodin when I feel the need.  I may have to get a larger compartmentalized dispenser for a weekly program.

Feet better, no less tired, and rib causing the discomfort.  When I showed Mary Ann and Karen the movement that caused pain, Karen suggested and Mary Ann agreed, "why don't you quit testing that movement to see if it gets better sooner?"  I started to ask if that was medical advice but remembered once showing a neighbor doctor a movement that irritated a sore shoulder and she said "so quit the movement" and, even though she is a highly regarded dermatologist, seems to be that still qualifies as medical advice - I didn't question the ladies here.

I did slip out yesterday for a haircut, which, considering the cancer diagnosis, having the hair to cut is a plus.  At least I think it is, but I have a good friend "twin" in Arizona who hasn't needed a hair cut for years; he has always said he was born first that fateful day years ago and God gave him a perfect head, had to cover mine with hair.  No one seems to argue with him when he says it!

Talk to you later. 

Multiple Myeloma

7-30-13

Just got to and back from the bakery while my caregiver wasn't watching, so I brought her a cinnamon roll for breakfast.

My specialty pharmacist called yesterday to check on my activities before getting approval for my second regimen of revlimid.  We don't have a picture phone so I don't know the extent to which she was smiling as she asked those questions, but after a few minutes I mentioned age and she did not, like my good friends, guffaw.  Nor did I mention to her the question one of those friends recently posed "was there a connection between unprotected sexual activity and the fractured rib"? He shall go unnamed, but forgive me a local hint for 1/2 100 members, he is the long hitter in the group, not infrequently long and "where did it go"?

After talking with the pharmacist, I called the drug company hotline to respond to the revlimid survey questions.  Apparently I passed since the pills are to be delivered today by FedEx.  So, another 21 day regimen begins this evening.

Although entirely possible that MM contributed to the rib weakness and thus the break, the source of most of my discomfort, as I begin this second regimen I realize that to date I have had few problems.  My feet numbness is no worse, probably better, and the only other symptom is the frequent exhaustion - no negative side effects.  Some have shared with me their experiences and I have so far escaped many of the problems they mention.  I am not foolish enough to believe I won't suffer some in the future, but neither am I considering every little twinge an onset.

I still don't know how to allow comments on this blog, nor to get to them if I did.  Although I don't want to load inboxes, I enjoy hearing from you when you have comments, suggestions, or questions.  Don't worry about loading my inbox, right after watching for the mail man, this is my daily highlight.

Multiple Myeloma

7-26-13

I decided to wait until this morning to report our visit with D. Milton yesterday..bushwa, I could not get to this page last evening, had some help this morning.

The visit went well.  I begin the second series of revlimid next Tuesday. 

We learned: not much could be expected from the first series except that I had no negative side effects;      :MM probably contributed to the rib fracture, resulting in my having a 15 minute infusion of Zometa to help with bone strength;
                  : my golf cart cavorting probably did not cause the fracture;
                  : good that my feet numbness is not worse, probably a bit better;
                  : no one asked about unprotected sexual activity - apparently they no longer are humoring me on that issue;
                  : my age means I am not a candidate for transfusion, otherwise full speed ahead.

We discussed Dr. Abonour at the IU Cancer Center.  Dr. Milton will help me make that contact if I choose to pursue.  At this time, I probably won't, and I doubt I want to get involved with the support group there.  I will, however, stay in touch with Joe Brown who related his experience and who is involved in fund raising for MM - that I hope to consider as time passes.

No vicodin before bedtime last night; did not sleep as soundly but not so fuzzy this morning.  I dislike pills.

Summing up - first series went as well as could be expected, we may know more when we see Dr. Milton on 8-27 after the second.

Off the regimen for a few days should be enjoyable, maybe I will have more excitement than watching for the mailman.  I even expect to see some of the closing holes of the shootout at Meridian Hills this afternoon.

Incidentally, although I started this to make it easy for those of you interested, I still don't know how to allow and then see comments.  I do respond to emails if anyone wants to know what the devil bushwa means.

Multiple Myeloma

7-23-13

Yesterday was not a good day; today was much better.

I am attributing most of my discomfort to the fractured rib.  After a nights sleep, with the help of a vicodin, I awake with no pain.  Only after activity does my right side bother me.  So, today I limited my right side as much as possible, and suffered little.  That says to me the discomfort is structural, not MM.  Possibly my Dr. will disagree when I see him on Thursday.

Tomorrow night at dinner I will take my last revlimid, at least the last in this first series.  On Thursday, we have many questions - haven't asked many to date - and hope to know more about the future.

Reading is my salvation.  Probably Mary Ann's also - keeps me out of her way.

Multiple Myeloma

7-20-13

Took my steroid fix early this morning.  When I got the urge to run around in a golf cart, or to install bathroom fixtures, or to vacuum (come to think about it, I never had that urge), or to do anything else requiring heavy duty, right handed work, I took my heating pad back to bed and treated the rib.  Seems to have been helping eliminate the pain.

So, now I will take my evening vicodin, get a bit dizzy, and a bit drowsy, and soon will take my heating pad to bed.  As I have mentioned, my goal is to eliminate the rib discomfort, then to return to MM, which means, stay with the program, which, with Mary Ann and Karen monitoring, I have done well, especially the no unprotected sex requirement.  I am often surprised to have to explain the thalidomide problem, but I continue to get guffaws when I do.

But for the vicodin effects, today has been a good one.

Multiple Myeloma

7-19-13

I haven't been here for a few days (not even certain I am now with Comcast being so frustrating.)

Wednesday started well, so well that I decided to put up some new racks and hooks in our bathroom, which has been repainted.  After two hooks and 1/4 of a rack, I cleverly realized I was aggravating my fractured rib, with resulting pain. Since I aggravate my right side when I brush my teeth, you might suggest that using a hammer and screwdriver would be a bit more severe - you would be right.  So now we have two new hooks and the beginning of a towel rack which may never get done.

Thursday was a bust, unless, as one of my daughters would say, being on vicodin is good.  I don't handle fussy very well.

Today, Friday, much better.  The blood test this afternoon revealed no problems, the many pills are not having a negative effect on readings.  Further, my oxygen level according to the nurse who tested it, is excellent, better than hers she said.  Oxygen has been some concern because the fractured rib is near a lung - no worries.

Tomorrow morning I take my weekly steroid fix, which last Saturday had me driving a gold cart around Meridian Hills, which will not recur since Mary Ann and Karen will be monitoring my activity, as they do frequently. 

My immediate goal is to eliminate the rib pain so I can deal with MM.  Next week, near the end of the current pill regimen, we will visit with Dr. Milton - hope to get an idea of where we are and where we are going.

Multiple Myeloma

7-16-13

Two or three lousy days lately - interesting how a fractured rib pushes aside for a while concern with Multiple Myeloma. 

Joe Brown, husband of Kathy, with whom I worked at Gardner & White, shared his tribulations with MM over the past 9 years.  As he said, he is still around to talk about it and to share his thoughts.  I will follow up some of his suggestions.

After making a foolish mistake on Sudoku this morning, I decided to lay off the "vicodin" to see if my head cleared.  No such luck, so I probably will take one tonight to sleep and start using pencil for puzzles.

I won't be making the Wednesday group tomorrow, too fuzzy to drive and Mary Ann keeps me at rest most of the time.

Hot here, hope it is comfortable where you are.

Multiple Myeloma

7-14-14

"Friday the 13th" came a day late at our house, but it stormed in yesterday. 

I began the day with my weekly steroid pills, the reason for which I forget.  I do recall the possibility of being overly active for a while and I must have had a bit of that.  I decided to go to the golf course at Meridian Hills to watch son-in-law Jeff with his host, Andy and my Ole Buddy Phil with his son-in-law Mike playing in different flights, both teams doing well.  Jim Hess provided a cart and I bounced around to see how the teams were doing.  After about three hours of watching them and visiting with others, I decided to return home for my daily nap, hoping to return if either or both won their flight with the result being participation in the "shoot out" the culmination of the Timberman member - guest tournament.  They both won - I did not return.

Instead, I was barely able to crawl off the bed after my nap - severe pain in my upper right side.  After talking with Tammy of HOI, we decided I should go to St. V's ER to determine the cause.  They found it - I have a fractured rib, upper fight.  Since the only cure for cracked and fractured ribs is time. ER kicked me out with a prescription for Hydrocodone (the poor mans Vicodin) - when looking for those pills at home after getting the script filled, Mary Ann said she had swallowed all of them - she probably needs them.

When the doctor at ER asked if I had recently injured that side,  I said "No" forgetting that weeks ago I had tried to lift a log from the front woods, a log even Noah (my neighbor who now does my heavy lifting) might have struggled to move.  I have from time-to-time noticed a bit of pain upper right.  I may have finished the break running around the golf course.  Whatever, now I am worthless around the house - at least I have an excuse.  I did find a position for sleep, but getting out of bed was more than a little painful.  I don't know how long Mary Ann will be able to help me dress!

When she was not at ER with me, Karen has been trying to activate a replacement box for the TV on our sun porch,  following the instructions, she called Comcast and after hours of trying to get a human, as directed, she never got one.  I tried to help, no such luck.  Between us Karen and I were on hold for more than 4 hours, still no activation.  We may need to consider alternatives to Comcast.

Mary Ann was cleaning the porch floor after dog Kato accidents.

Another blood test 7-19, then see Dr. Milton again on 7-25.  Maybe we will get a better feeling for where we are with Multiple Myeloma, but he probably will pass on ribs and dogs.

I continue to be "whatever will be, will be" but we will see how that goes after a full day of not only no heavy lifting, but no lifting at all.

Peace.

Multiple Myeloma

7-12-13

Just returned from a blood test - nurse said all OK.  I think that means the meds are not having a negative effect on my blood; it does not speak to Myeloma.  Have another test on 7-19, then see Dr. Milton on 7-25, at which visit we may learn more.

Mary Ann and I stopped by The Department of Insurance yesterday.  I have for many years been the volunteer Senior Life Insurance Consultant at the Department, advising examiners on complaints filed by consumers re life insurance and annuities.  Yesterday, though, I delivered what I think is the final form required by the State to be named an Administrative Law Judge, to serve as needed.  Fortunately, I will set the times for my cases so they will not interfere with my afternoon naps.

We visited with Debra and Bettye, two Associate Commissioners with whom (for whom) I work.  I was disappointed they were dubious about my thought that cleaning, laundry, and vacuuming were contributing to my being tired most of the time.  Actually, what they suggested was that Mary Ann might want to send me to the Department so she could get some rest.  No respect.

Multiple Myeloma

7-10-13

I haven't mentioned how the diagnosis of Multiple Myeloma came about - some of you have asked.

I went to Dick French, neurologist for my foot discomfort - usually I see him at the golf course.  He found no neuropathy but did find an elevated protein in a blood test. He immediately sent me to Dan Milton,  oncologist at Hematology-Oncology of Indiana (HOI) across the street from St. V's hospital.  I didn't know we were concerned about cancer until I drove into the parking lot there.  After weeks of testing, all negative i.e. good news, the final test was positive, and the treatment began.  My only symptom was foot discomfort.

But for the diagnosis, Mary Ann and I have been most pleased with Dr. Milton and his chief nurse (or boss!) Tammy Lineback.  In this age of going to the Doctor by referral rather than by choice, good to know had we had a choice we could not have done better.

Heard yesterday from a friend at the Crossings in Bonita Bay.  His struggles with cancer make mine insignificant.  I take no pleasure from that, but, as is so often the case, getting a health problem causes others to share their problems.  Tough world for us old guys.

As I have noted, still no adverse symptoms other than the feet and being very tired most of the time.  First blood test is 7-23, another on 7-30 - maybe we will know more.

Multiple Myeloma

7-9-13

Yesterday I sent a multiple addressee email stating that this blog could be accessed by those interested.  I enjoyed the replies, thanks for those kind words.

I just sent another with addressees I missed yesterday.  My intent is to make this available for anyone interested without cluttering inboxes.

I am not hurting.  My foot discomfort has diminished some.  I am eating and not losing weight.  But, I have never been as tired and listless as I have been the past couple of days.  Fortunately, Mary Ann and Karen are motoring along and putting up with me, and I have a delightful young man (Noah Schrader) from next door to do the heavy work e.g. loading the water softener. 

One of the possible problems is elevated temperature, which means, of course, that I wonder three or four times a day if I have one - strange how the mind works.  So now we have a thermometer handy for frequent checks.  Fortunately, it is an oral one.

I still expect to have at least one 81 on the golf course before next June to keep my streak going.

Multiple Myeloma

7-7-13

Second day following Revlimid of night before.  No unwanted side effects, just very tired most of the time with troublesome feet, no unwanted pregnancies.

Toughest part of all this is for Mary Ann.  Without suggesting predestination, I am "whatever will be, will be" - she hasn't got there.  Maybe because she frequently says "go lie down" when she has checked to make sure I have taken my meds.  And she keeps the house running as smoothly as possible.

Most difficult for me is not having enough energy to mow and otherwise care for the yard, to haul salt to the basement, to feed the birds and clean the pool.  Golf is not even considered, the surprise being I don't mind. 

However casual I am about Myeloma, I realize what I have is cancer.  The thought of that before the testing began would have been most difficult to accept, since it really is uphill.  We will be interested in seeing how long that lasts after the results are in.

Multiple Myeloma

7-6-13

Took my once-a-week 5 pill dosage this morning, one often side effect of which is twitching and insomnia.  No twitching here and my afternoon nap was as usual.  For those of you stuck reading this, the afternoon nap is not entirely age related - I begin my morning reading between 2 & 3 a.m.  I seldom recommend books, but you might want to consider BASEBALL AS A ROAD TO GOD by John Sexton.

Multiple Myeloma

7-6-13

Weeks ago starting with discomfort (not pain) in my feet I began testing for multiple myeloma, first suggested by an elevated protein in my blood.  After many negative (meaning good news) results, a PET scan was positive - I have multiple myeloma, which to me means blood cancer showing up in various places.

Consequently, last evening I began a treatment program of revlimid (a derivative of thalidomide) along with a number of other pills which I can neither spell nor pronounce but which are to ward off negative effects from revlimid.  My good friends have been amused by the conditions to which I agreed to get thalidomide.

So, this is the first post to my blog about cancer.  If you are reading it, I have continued to post thoughts and results with which I don't clutter your email but which you have been able to access here if and when you have any interest.